This section of the PRP Survival Guide focuses on the daily challenges to body, mind, and spirit encountered by PRP patients.
Every PRP journey is unique. The phrase, “my version of PRP”, helps underscore the fact that “What works for one does not work for all.”
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ACUTE PHASE
ALCOHOL
AQUAPHOR (Free)
.BATHS & SHOWERS
.CAREGIVERS
CHILDREN WITH PRP — See Juvenile Onset
CLOTHING
COMMUNICATING WITH FAMILY and FRIENDS
COPING STRATEGIES
.DEXTERITY
- DIET, NUTRITION and SUPPLEMENTS
DISABILITY
DRY SKIN
.EARS & HEARING, IMPAIRED
ENDGAME, REMISSION
ENERGY and FATIGUE
EXERCISE and PHYSICAL ACTIVITY
EYES and VISION, IMPAIRED
.FEET and IMPAIRED MOBILITY
FINANCIAL CHALLENGES OF PRP
FINGERNAILS
FLARES
.- GLOSSARY OF PRP-RELATED WORDS & JARGON
. HAIR LOSS
HANDS, DEXTERITY, FINGERNAILS and GLOVES
HEALING MILESTONES
HOPE
HOUSEKEEEPING
HUMIDIFIERS
.INFECTIONS
ITCH & ITCH RELIEF
.JOINT PAIN
JUVENILE ONSET PRP, see Children with PRP
.LAUNDRY
LEGS, SWELLING
LIP CARE
LYMPH NODES, GLANDS and BUMPS
.MAKEUP
MARIJUANA, MEDICAL
MENTAL WELLNESS
MOBILITY, IMPAIRED
.NOSE, AND NASAL ISSUES
.PAIN and PAIN MANAGEMENT
PETS
PREGNANCY
.QUALITY OF LIFE
.RELAPSES and SETBACKS
RESEARCH, PRP
REMISSION, ENDGAME
RUDE PEOPLE, HOW TO DEAL WITH
.SCALP
SELF-ADVOCACY
SETBACKS and RELAPSES
- SHEDDING, FLAKING and PEELING
SLEEP AND SLEEP DEPRIVATION
SOCIALIZATION
STIGMATIZATION
STRESS and TRIGGERS
SUN and ULTRAVIOLET LIGHT
- SWEATING and THERMOREGULATION
SWIMMING
.TALES OF THE ROAD
TATTOOING and BODY ART
TRAVEL and VACATIONS
TRIGGERS and STRESS
.WEIGHT — LOSS and GAIN
WORK-RELATED ISSUES