Tales from the Open Road
The PRP Survival Guide is designed to be a repository of experiences and insights shared by PRP patients and their caregivers. Collectively, the PRP community possesses a wealth of practical knowledge about pityriasis rubra pilaris. Only we can harvest that knowledge. Tell us your story. Share what you have learned as a patient diagnosed with PRP. from onset, to diagnosis, to treatment and the journey.
Location: Hertfordshire, England;
Onset: October 2010 at the age of 66
Current Status: Remission as of February 2012
During the first three months of 2011, Phil experienced many of the symptoms familiar to PRP patients worldwide. “Islands of sparing slowly disappeared, my whole body was turning red, my skin shed continuously. I was raw and so very itchy, legs/ankles were swollen, nails thickened and yellow, thick/cracking skin on soles of my feet, some hair loss, no body temperature control, etc. My PRP diagnosis confirmed by a second dermatologist on February 8m 2011. Phil’s Story