November 1, 2013
The PRP Alliance website was launched and the PRP Survival Guide appeared as a section with basic information about pityriasis rubra pilaris. It was a start.
May 20, 2015
The PRP Survival Guide was re-introduced as a standalone website to make more information about PRP more accessible to patients and caregivers.
May 20, 2025
The PRP Survival Guide will undergo significant changes in the weeks and months ahead to more effectively serve the PRP global community. Four objectives will re-imagined. They include:
- Strategies to impact the timely diagnosis of PRP by dermatologists and dermatopathologists
- Strategies to impact access to effective treatment options already approved by the FDA for psoriasis, atopic dermatists and other skin disorders tha mimic PRP.
- Strategies to inspire dermatologists and general practitioners to better understand the Quality of Life impacts of PRP from the patient perspective.
- Strategies to inspire dermatology researchers to focus on the diagnosis, treatment and Quality of Life impacts of PRP on the PRP global community.