STANDING UP FOR YOUR HEALTH

In 2016, the Aplastic Anemia & MDS International Foundation received a grant to develop a self-advocacy brochure for patients with rare diseases. Standing Up for Your Health: Self Advocacy for Patients with Rare Diseases, is more than a brochure, it’s a strategy worthy of note. While it is unlikely that rank and file PRP patients and caregivers will go cover-to-cover or adopt all of the suggestions, but, as they say, “There’s gold in them dar’ hills”. 

Download the PDF: STANDING UP for your health