The PRP Survival Guide is designed to be a repository of experiences and insights shared by PRP patients and their caregivers. Collectively, the PRP community possesses a wealth of practical knowledge about pityriasis rubra pilaris. Only we are best positioned to harvest that knowledge.

Share what you have learned about juvenile onset PRP as a parent/caregiver. Share articles you feel might be worth reading or websites worth visiting.

This section of the PRP Survival Guide will expand as more PRP parents share.


In the Queue provides readers with a link to topic-specific POSTS in the PRP Facebook Support Group. Members may click the boldface blue link and read the unedited post. in its entirety. Non-members have two options: join or wait for the original post to be edited and added to the PRP Survival Guide as a bona fide article.

PRP & KIDS — HANDS/FEET
Ranae G — Brandon, Mississippi; March 25, 2019

PRP & KIDS
Ranae G — Brandon, Mississippi; March 19, 2019

PRP & KIDS
Samantass S — Lithuania; March 10, 2019

PRP & KIDS
Janine R — Medinah, IL; December 8, 2017

PRP & KIDS
Jessica N — Rochester, New York; July 8, 2018

PRP & KIDS
Delanie E — Kalispell, Montana; August 21, 2018

PRP & KIDS
Kerstin F — Frankfurt, Germany; November 3. 2018

PRP & KIDS
Annemi P — Cape Town, Western Cape, South Africa; December 29, 2018

PRP&  KIDS
Stephanie D — Colorado; February 27, 2019

PRP & KIDS
Love R — Austin, Texas; February 22, 2019

PRP & KIDS
Stephanie D — Colorado; February 20, 2019

PRP & KIDS
Ginny M — Lexington, SC; February 16, 2019