Top 30 questions in need of answers

Whether you are a PRP patient or a PRP caregiver, there are BASIC questions in need of focused answers. Here are 30 for starters.

Please note that there is a Google Translate button on every page of the PRP Survival Guide for those who prefer an alternative to English.

If you have more questions, click EDITOR or post to the PRP Facebook Support Group.

The following 30 questions fall under the heading: What PRP patients and caregivers NEED to know. There are certainly other questions, but this is where we have decided to start.

❏  What is the NORD PRP Report AND have I read it ?

❏  What is the GARD PRP Report AND have I read it?

❏  Why is it so difficult to diagnose PRP?

❏  What are the odds of getting PRP?

❏  Do we know what causes PRP? 

❏  Is PRP an autoimmune or auto-inflammatory disease?

❏  Is there a cure for PRP?

❏  How do PRP symptoms progress over the body? 

❏  What are the “Quality of Life” impacts of PRP? 

❏  How does healing progress?

❏  What does a PRP parent need to know?

❏  How long will my PRP journey last? 

❏  What constitutes a rare disease?

❏  What is the PRP Global Community? 

❏  How can I explain PRP in 30-seconds?

❏  What is the history of our name (PRP)?

❏  What is the significance of the Dowling Oration (circa 2006)?

❏  Is asking Dr. Google about PRP a “Fool’s Errand”?

❏  What is the basic anatomy of skin?

❏  How is pityriasis rubra pilaris pronounced?

❏  What is the Rule of Nines?

  How to be a Storyteller?

❏  What is the PRP Research Cohort?

❏  What is the Glossary of PRP Words & Jargon?

❏  How do I find a PRP-savvy dermatologist?

❏  What is Standing up for your own health?

❏  What resources are available to PRP patients and caregivers?

❏   Where can I find an effective strategy for Self-Advocacy

❏  What is your PRP “Endgame”?

❏  What are the basic PRP “Treatment Options”?

❏  How can I support the PRP global community in 2021?