It’s time for me to resurrect the PRP newsletter. Twenty-four issues (an average of 24 pages per issue) were published between April, 2014 and October, 2015. It has taken me two and a half years to get myself to a point — mentally — where I can make another 24-issue commitment. The following webpage is an […]
A PRP Newsletter Reborn Read More »
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Protected: COVID-19 Focus on Vaccinations FINAL Read More »
From the Editor… PRP Awareness Month (November 1-30) provides an opportunity for the PRP community to revisit the PRP Survival Guide and reassess the current information. What’s missing? What information do you want to have available. What questions are in need of answers? Share your thought via email to editor@prpSurvivalGuide.org. The focus here is on treatment options (prescription drugs and
Chapter 2 — Treating PRP Read More »
by Bill McCue, Founder & President, PRP Alliance, Inc. A little bit of history… When I was diagnosed with adult onset PRP on November 28, 2012, I immediately joined the PRPSupport Group and subscribed to their email-based forum. As a newcomer to that group, I was frustrated by the lack of response to the questions I posted.
PRP Community Database Update Grant Read More »
. Editor’s Note: Regardless of the worthiness of any cause, you have a right say “No”.It’s very easy to say “No” when a stranger knocks on your door. Whatever they’re selling, we’re not buying. Let’s face it — we’re all getting pretty darn good at saying “No”. In fact, for most of us, “No” has become
The Right to Say “NO” Read More »
From the Editor… When a member of the PRP Facebook community asked about cryotherapy as a way to provide relief from pain and itch, I conjured a vision of my dermatologist with the “Cryo Gun” he uses to ZAP potential skin cancer targets. How could that reduce pain and itch? Then I saw the image of a patient in
Efficacy of Whole Body Cryogenics Read More »
From the Editor… As a rule, PRP patients and caregivers are given the proper spelling of pityriasis rubra pillars, the acronym “PRP” and a referral to Dr. Internet. Some of us reach out to Dr. Yahoo. Others seek out Dr. Google. It doesn’t take long for us to learn that using PRP doesn’t work. Enter “PRP” and the
Asking Dr. Google? Read More »
Dateline: November 22, 2022 — This page of the PRP Survival Guide was originally designed to be a repository of experiences and insights shared by the parents/caregivers of children diagnosed with PRP. It was also intended to serve adults diagnosed with PRP as children. With the help of PRP parents, we hope that this webpage will
PRP, Children and Parents Read More »
From the Editor… The PRP Survival Guide is a repository of experiences and insights shared by PRP patients and their caregivers. Collectively, the PRP community possesses a wealth of practical knowledge about pityriasis rubra pilaris. We need to harvest that knowledge for those in need of enlightenment. PRP patients and caregivers often require one or more referrals
Building a PRP Team of Healthcare Professionals Read More »
From the Editor… I was lucky. My wife has GREAT insurance. My copays were low and acitretin, triamcinolone, Desonide, Clobetasol, urea lotion, and hydroxyzine and worked. I was “active” with PRP for only 20 months (8/2012 to 04/2014). For too many PRP patients and their caregivers, the cost of healthcare can dramatically limit access to affordable drugs. The
Cost of Healthcare — Horror Stories Read More »