Self-Advocacy Principle 2
Editor’s Note — The unveiling of Principle 2 is scheduled for December 29, 2022.
7-PRP Advocacy
What is a patient advocate?
Editor’s Note: The following information about the role of patient advocates was “harvested” from the National Patient Safety Foundation, Boston, MA several years ago and reflect the needs of PRP patients worldwide. The Role of the Patient Advocate Illness is a stressful time for patients as well as for their families. The best-laid …
Autoimmune v. Autoinflammatory: The Verdict
Autoimmune v. Autoinflammatory: The Verdict In those early days as an advocate for the PRP community, the rank and file (patients and caregivers) couldn’t care less if pityriasis rubra pilaris was an autoimmune or an autoinflammatory disease. I should have known I was in trouble when I first asked Drs. Google and Yahoo. “Autoinflammatory disorders …
PRP “Quality of Life” Discussion Guide
What are the Quality of Life Impacts of PRP? A series of”Quality of Life” focus groups were conducted in April and July (2021) invoving 40 PRP patients as part of ongoing research at Oregon Health and Science University. The following is the Discussion Guide used in the conduct of those focus groups. The questions help …
June Focus Groups
Moderator’s Note. The purpose of this webpage is to provide an overview of the next series of PRP “Quality of Life” Focus Groups. A focus group is a research technique used to collect data through group interaction. A focus group is designed to identify feelings, perceptions, and thoughts about a particular topic. The first PRP Focus Group took place on Tuesday, …
PRP Quality of Life Focus Group: May 24, 2021
Moderator’s Note. The purpose of this webpage is to provide an overview of the upcoming PRP “Quality of Life” Focus Groups. A focus group is a research technique used to collect data through group interaction. A focus group is designed to identify feelings, perceptions, and thoughts about a particular topic. The first PRP Focus Group took place on Tuesday, April …
PRP Focus Group Overview
Moderator’s Note. The purpose of this webpage is to provide an overview of the upcoming PRP “Quality of Life” Focus Groups. A focus group is a research technique used to collect data through group interaction. A focus group is designed to identify feelings, perceptions, and thoughts about a particular topic. The first PRP Focus Group took place on Tuesday, April …
Protected: Depression Screening
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Protected: Screening Tools for Depression
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Protected: 20 Questions
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