From the Editor… Prior to November 2013, there was no concerted effort by healthcare professionals or PRP patients to gather information about the PRP community. The first PRP Global Census was based on a mailing list extracted from over 29,000 emails archived by the PRP Support Group founded in 1997. As a member/subscriber to the PRP-L List, I was authorized […]
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37. PRP Survival Guide. Chapter 7 — PRP Research. https://prpsurvivalguide.org/2017/05/21/chapter-6-prp-research/
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The PRP Survival Guide is designed for educational purposes only and not for the purpose of rendering medical advice. It is not the intention of the PRP Survival Guide to provide specific medical advice, but rather to provide users with information to better understand and manage the burden of pityriasis rubra pilaris on body, mind and spirit. No individual
When a PRP patient looks up “pityriasis rubra pilaris in Google, DermNetNZ.org is typically #1 in the Top 10 of websites found. New Zealand is a country with with a population of 4.6 million and only 62 dermatologists. There is an estimated “active” PRP patient population of only 12. DermNet New Zealand claims to be “The world’s most popular online
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07.05.01 — British Association of Dermatologists British Association of Dermatologists (BAD)
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07.04.03 — Society for Investigative Dermatology Society for Investigative Dermatology (SID) Home The Society for Investigative Dermatology was born out of a vision to serve a segment of science previously unrepresented by the medical societies of the United States: investigative dermatology. The founders saw a need for an organization with a devotion to cutaneous investigation,
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07.04.02 — Society of Dermatology Physician Assistants Society of Dermatology Physician Assistants (SOPA) http://www.dermpa.org The Society of Dermatology Physician Assistants (SDPA) is a 501c6 non-profit professional organization composed of members who provide dermatologic care or have an interest in the medical specialty of dermatology. Its Fellow members are PAs who provide medical services with the
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From the Editor… There is a point in the creation of every organization where someone has to decide on the name. For me, the PRP Alliance was easy. Even the PRP Survival Guide was effortless. But who thought that the Center for Information and Study on Clinical Research Participation would even fit on a business card? And
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RDLA is a collaborative organization designed to support the advocacy of all rare disease groups. RDLA works to empower the individual to become an advocate by providing informational meetings, legislative resources, advocacy tools, and special events that support organizations and advocates working to promote rare disease legislation. The goal of RDLA is to bring the
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