From the Editor The PRP Survival Guide is a repository of experiences and insights shared by PRP patients and their caregivers. Collectively, the PRP community possesses a wealth of practical knowledge about pityriasis rubra pilaris. We need to harvest that knowledge for those in need of enlightenment. Share what you have learned about PRP as a patient or […]
INDEX — PRP and the ADA Read More »
PRP and Alcohol PRP and Alcohol The PRP Survival Guide is designed to be a repository of experiences and insights shared by PRP patients and their caregivers. Collectively, the PRP community possesses a wealth of practical knowledge about pityriasis rubra pilaris. Only we can harvest that knowledge. Share what you have learned about PRP and alcohol as
Diagnosing PRP — The Advocacy Mission Editor’s Note: The timely and accurate diagnosis of pityriasis rubra pilaris is a goal shared by the PRP global community. We are confident that when a dermatologist suspects PRP and specifically instructs the dermatopathologist to look for evidence — a diagnosis supporting clinical observations is the result. Patient Self-Advocacy
Advocacy issues related to diagnosing PRP Read More »
From the Editor… Prior to November 2013, there was no concerted effort by healthcare professionals or PRP patients to gather information about the PRP community. The first PRP Global Census was based on a mailing list extracted from over 29,000 emails archived by the PRP Support Group founded in 1997. As a member/subscriber to the PRP-L List, I was authorized
How do we track the Global PRP Community? Read More »
37. PRP Survival Guide. Chapter 7 — PRP Research. https://prpsurvivalguide.org/2017/05/21/chapter-6-prp-research/
Chapter 6 PRP Research Read More »
The PRP Survival Guide is designed for educational purposes only and not for the purpose of rendering medical advice. It is not the intention of the PRP Survival Guide to provide specific medical advice, but rather to provide users with information to better understand and manage the burden of pityriasis rubra pilaris on body, mind and spirit. No individual
When a PRP patient looks up “pityriasis rubra pilaris in Google, DermNetNZ.org is typically #1 in the Top 10 of websites found. New Zealand is a country with with a population of 4.6 million and only 62 dermatologists. There is an estimated “active” PRP patient population of only 12. DermNet New Zealand claims to be “The world’s most popular online
DermNet New Zealand Read More »
07.05.01 — British Association of Dermatologists British Association of Dermatologists (BAD)
British Association of Dermatologists Read More »
07.04.03 — Society for Investigative Dermatology Society for Investigative Dermatology (SID) Home The Society for Investigative Dermatology was born out of a vision to serve a segment of science previously unrepresented by the medical societies of the United States: investigative dermatology. The founders saw a need for an organization with a devotion to cutaneous investigation,
Society for Investigative Dermatology Read More »
07.04.02 — Society of Dermatology Physician Assistants Society of Dermatology Physician Assistants (SOPA) http://www.dermpa.org The Society of Dermatology Physician Assistants (SDPA) is a 501c6 non-profit professional organization composed of members who provide dermatologic care or have an interest in the medical specialty of dermatology. Its Fellow members are PAs who provide medical services with the
Society of Dermatology Physician Assistants Read More »