From the Editor…Rather than lament the forced hiatus of the PRP Survival Guide and watch Game of Thrones, I have decided to tweak “The Basics” a wee bit. Okay…more than a wee bit. To ancient Greeks and Egyptians the mythical Phoenix was a symbol of renewal and rebirth. While the magnificent Phoenix lived for […]
The Rebirth of Our Phoenix Read More »
From the Editor… The Genetic and Rare Diseases Information Center once again provides patient-friendly information. Their “coverage” of autoinflammatory Diseases meets that standard. The following information is dated January 2017. If you REALLY want to know about autoinflammatory diseases, this is worth a cup of coffee and some “Quiet Time”. Autoinflammatory diseases are a relatively
Understanding Autoinflammatory Diseases — GARD Read More »
What are the 6 types of PRP? The initial five classifications of pityriasis rubra pilaris were presented to the British Association of Dermatologists in 2003 by Dr. Andrew Griffith, a well-respected London-based dermatologist. His classifications reflected 35 years of diagnosing, treating and researching PRP and have been universally accepted by dermatologists worldwide. According to Griffiths, the PRP patient population can
What are the SIX “types” of PRP? Read More »
From the Editor… There may be a place for music in the treatment of pityriasis rubra pilaris — music that brings peace and solace to the PRP community. This page is an experiment to see what “inspiration” comes our way. If music can soothe the soul, what music might others share. WARNING: Apologies in advance if
Sometimes we need to “Give a Listen” Read More »
From the Editor… The National Psoriasis Foundation offers information on stress that may be applicable to pityriasis rubra pilaris. Here are some takeways: ✽ Stress is a common trigger for a psoriasis flare. At the same time, a psoriasis flare can cause stress. ✽ Woman, in particular, seem particularly vulnerable to stress due to psoriasis.According
From the Editor… When a member of the PRP Facebook community asked about cryotherapy as a way to provide relief from pain and itch, I conjured a vision of my dermatologist with the “Cryo Gun” he uses to ZAP potential skin cancer targets. How could that reduce pain and itch? Then I saw the image of a patient in
Efficacy of Whole Body Cryogenics Read More »
From the Editor… On January 26, 2017, Jan T (Ringwood, NJ), posted a message to members of the PRP Facebook Support Group regarding clothing. The feedback she received is well worth including in the PRP Survival Guide. I have attended three annual meetings of the American Academy of Dermatology (Denver, San Francisco and Orlando). Delasco always has
Clothing — Delasco Read More »
From the Editor… Statistically, there are only 813 “active” PRP patients in the US. While we consider ourselves to be über rare, we are not unicorns. One of the goals of PRP Advocacy is to rise above the noise level. While we will NEVER be conspicuous in our absence, I just want the PRP community
AAD Posts PRP Family Video Read More »
Issues related to lips and lip care The PRP Survival Guide is a repository of experiences and insights shared by PRP patients and their caregivers. Collectively, the PRP community possesses a wealth of practical knowledge about pityriasis rubra pilaris. We need to harvest that knowledge for those in need of enlightenment. The image of a desert seemed
From the Editor… From time to time, PRP patients and caregivers will share insights regarding eye, vision and the need to access an opthamologist for educational purposes only and not for the purpose of rendering medical advice. It is not the intention of the PRP Survival Guide to provide specific medical advice, but rather to provide users with information
PRP Feedback: Eyes & Impaired Vision Read More »