This section of the PRP Survival Guide focuses on the daily challenges to body, mind, and spirit encountered by PRP patients. Every PRP journey is unique. The phrase, “my version of PRPâ€, helps underscore the fact that “What works for one does not work for all.†Please use CONTACT (right end of the navigation bar) to ask […]
EDITOR’S NOTE: A webpage-by-webpage review of the PRP Survival Guide began on November 15, 2022. At that time there were 548 published articles, 221 drafts in need of completion and 184 pre-draft articles that may or may not see the light of day. THE BASICS is where WE started. I say WE because PRP patients
From the Editor (June 10, 2025) I have been writing about PRP from the patient perspective for over 12 years. My immediate goal is to create a PRP Archive toe enable patients and caregivers to more easily access what I have already written. To that end the PRP Survival Guide will undergo significant changes in
ROADSIDE EMERGENCY KIT If pityriasis rubra pilaris is best described as a journey, then we, as travelers, should prepare for the inevitable emergencies that will befall us en route. ✽  NORD PRP Report: Keep two copies: one for you and one for the person with a “Need to Knowâ€. It might be family member, your employer,  a
PRP Roadside Emergency Kit Read More »
Editor’s Note Whether you are a newcomer or a seasoned traveler, the more you know about pityriasis rubra pilaris, the better prepared you will be for the journey ahead. The following information has been developed to enlighten PRP patients and their caregivers, family and friends, teachers and school  administrators, and employers and co-workers. This information may also enlighten dermatologists and
New Members — Getting a Good Start Read More »
From the Editor… Just for Fun — While writing the entry for the PRP Glossary of Words & Jargon on the subject of vacuum clearers, e.g., Dyson, Meile, Romba, Hoover, DustBuster, etc., I looked up images and stumbled upon a vacuum cleaner that made me chuckle. Consider this “just for funâ€. INTRODUCING the PRP 2020
Introducing the PRP 2020 Electric Vacuum Cleaner Read More »
Editor’s Note — PRP Awareness Month is six months away. There’s plenty of time to advance the interests of the PRP Global Community. ligula, eget egestas tortor tempor venenatis. Vestibulum id leo sit amet erat eleifend fringilla. Vestibulum fringilla lacinia lacus sit amet consequat. Mauris tortor leo, hendrerit vel imperdiet at, dignissim eget arcu. UPDATE
From the Editor — The following sources were used in the preparation of Jan Tennant’s article PRP, Eyes and Impaired Vision. MedlinePlus, U.S. National Library of Medicine https://medlineplus.gov/ency/article/001017.htm National Institutes of Health https://nei.nih.gov/health/cornealdisease/ https://nei.nih.gov/health/dryeye/dryeye https://nei.nih.gov/health/blepharitis https://nei.nih.gov/kids/glossary https://nei.nih.gov/kids/about_the_eye https://nei.nih.gov/kids/your_eyes_natural_defenses AllAboutVision.com https://www.allaboutvision.com/conditions/eye-discharge.htm https://www.allaboutvision.com/eye-exam/expect.htm
References and Links — PRP, Eyes and Impaired Vision Read More »
Are you a “Newbie” or “Seasoned Traveler” on our journey from onset to remission? Are you a patient or caregiver facing the daily challenges of body, mind and spirit? Are you part of an extended family or a friend who wants to understand and offer support?  The following list of PRP-related resources should be shared with those who care. Remember… What works
From the Editor… Nearly two years ago (May 17, 2017) I received an email from Dr. Teri Greiling,  Assistant Professor of Dermatology at Oregon Health and Science University in Portland, Oregon. Like every PRP patient and caregiver, Dr. Greiling lamented the fact that not a single therapeutic trial had ever been conducted for patients with PRP. She also
OHSU Studies PRP and Taltz (ixekizumab) Read More »