PRP Survival Guide

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Text: "It SUCKS! No, Seriously - It Does.

Quality of Life Index

Why should the PRP global community be concerned about the Dermatology Life Quality Index (DLQI)? Why o]invest so much time and effort helping GlobalSkin and OHSU build a better mousetrap. Quite simply — it SUCKS! Abstract on the Dermatology Life Quality Index (DLQI) — Finley, A.Y. The following five statements represent the ABSTRACT published in May 1994

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Focus Group logo with red spiral design.

PRP Research — OHSU

OHSU, PRP and Quality of Life Research Dr. Teri Greiling is an OHSU dermatologist who sees patients from across a wide spectrum of dermatologic diseases and has a special interest in autoimmunity and PRP.  She has led two investigator-initiated drug trials investigating treatments for PRP and helped author the National Organization for Rare Disorders consensus

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PRP & Mental Wellness

Issues related to mental wellness IThe PRP Survival Guide is a repository of experiences and insights shared by PRP patients and their caregivers. Collectively, the PRP community possesses a wealth of practical knowledge about pityriasis rubra pilaris. We need to harvest that knowledge for those in need of enlightenment. Our emotional health is every bit as important

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Winding road with mountains and lake view.

PRP Journeys — The Road Less Traveled

Tales from the Open Road The PRP Survival Guide is designed to be a repository of experiences and insights shared by PRP patients and their caregivers. Collectively, the PRP community possesses a wealth of practical knowledge about pityriasis rubra pilaris. Only we can harvest that knowledge. Tell us your story. Share what you have learned as a patient diagnosed with

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