Protected: Is a Timely Diagnosis of PRP
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Protected: In the Queue with Murray Read More »
Why should the PRP global community be concerned about the Dermatology Life Quality Index (DLQI)? Why o]invest so much time and effort helping GlobalSkin and OHSU build a better mousetrap. Quite simply — it SUCKS! Abstract on the Dermatology Life Quality Index (DLQI) — Finley, A.Y. The following five statements represent the ABSTRACT published in May 1994
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OHSU, PRP and Quality of Life Research Dr. Teri Greiling is an OHSU dermatologist who sees patients from across a wide spectrum of dermatologic diseases and has a special interest in autoimmunity and PRP. She has led two investigator-initiated drug trials investigating treatments for PRP and helped author the National Organization for Rare Disorders consensus
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I hate holly more than PRP! by Bill McCue (August 2018) What does holly have to do with pityriasis rubra pilaris? Â And what does holly have to do with HOPE and REMISSION. Let me explain.My house has holly bushes; too many holly bushes. Oh, how I hate holly bushes! But they look great from afar.
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Issues related to mental wellness IThe PRP Survival Guide is a repository of experiences and insights shared by PRP patients and their caregivers. Collectively, the PRP community possesses a wealth of practical knowledge about pityriasis rubra pilaris. We need to harvest that knowledge for those in need of enlightenment. Our emotional health is every bit as important
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You Don’t Have To Do It Alone!Principle 5 Editor’s Note — The official unveiling of Principle 5 is scheduled for February 2, 2023. Â
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PRP and DIAGNOSTIC CODING ICD Coding for Rare Diseases from GARD Does your rare disease have a code? Were dermatologists ready for ICD-10? What is the ORPHA Number for PRP
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How is pityriasis rubra pilaris pronounced? This is not as stupid a question as it might sound. When a dermatologist confirms the diagnosis as “pityriasis rubra pilaris or PRP” we too often hear only the acronym “PRP”.  That’s easy to say. I confirmed the proper spelling of pityriasis rubra pilaris from the paperwork I brought home from the
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Tales from the Open Road The PRP Survival Guide is designed to be a repository of experiences and insights shared by PRP patients and their caregivers. Collectively, the PRP community possesses a wealth of practical knowledge about pityriasis rubra pilaris. Only we can harvest that knowledge. Tell us your story. Share what you have learned as a patient diagnosed with
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