The following webpage provides an overview of what is important about each question presented on the BASIC webpage. These are the “takeaways” you should have you in your metaphorical toolbox when dealing with family, friends and even dermatologists. As your PRP journey continues, you will become a Subject Matter Expert (SME) when you want to […]
Editor’s Note: The following information about the role of patient advocates was “harvested” from the National Patient Safety Foundation, Boston, MA several years ago and reflect the needs of PRP patients worldwide. The Role of the Patient Advocate Illness is a stressful time for patients as well as for their families. The best-laid
What is a patient advocate? Read More »
PRP Global Database — 2022 Update Editor’s Note: This webpage focuses on the PRP Global Database as of January 31, 2020. The PRP-related data we capture is important to every member of the PRP global community. Whether you are a patient, loving caregiver (spouse, partner, or parent), an extended family member, friend or a healthcare
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What Good Came from PRP? An oxymoron is a figure of speech that combines contradictory words with opposing meanings, like “old news,” “deafening silence,” or “organized chaos.” Oxymorons may seem illogical at first, but in context they usually make sense. (Source: grammarly.com) On November 2, 2022, a PRP caregiver (HH, Ontario, Canada) posted a question
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2022 PRP Awareness Month Index . Nov 1 — PRP Awareness Month Has Begun The annual, month-long, awareness-building campaign began yesterday in New Zealand and Australia. They are already on Day two.Takeaway #1: There are 1.487 PRP patient profiles in the PRP Global Database. Takeaway #2: We are a global community with valuable resources, PRP Support
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Make the Most of Every Clinic Visit Editor’s Note: I was not a good self-advocate for the first three months after the onset of pityriasis rubra pilaris — before I knew it was PRP. I will be the first to admit that I let my dermatologist “run the show”. My dermatologist diagnosed with seborrheic
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We can all agree that the PRP global community is a worthy cause. Over the past two months, donations from 123 PRP patients and caregivers have already been committed to the following companies. Please consider a symbolic contribution of $20.25 to help maintain the PRP global community through December 2025. Some donate less. Some donate more.
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November 1-30, 2022 From the EditorA red dot, the size of a dime, appeared on my forehead on August 8, 2012. It took nearly four months, a six-day hospital stay, the firing of my first dermatologist, and the ordering of a fourth biopsy that specifically instructed the dermatopathologist to consider PRP before I got my
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How to join the PRP Support Group on Facebook For those who are seasoned Facebookers, the PRP Support Group on Facebook is relatively easy to find. Step One — Go to: Facebook.com Step Two — Locate: “Search for people, places and things” Step Three — Enter: “Pityriasis Rubra Pilaris (PRP)” Step Four — Click: “Ask
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Back to Square One? Yada yada yada yada yada yada yada yada yada yada yada yada yada yada yada yada yada yada yada yada yada yada yada yada yada yada yada yada yada yada yada yada yada yada yada yada yada The Red Bastard has returned! At first glance it appeared to be a spider bite. However, when it did not improve with medication, my dermatologist performed a biopsy. A more definitive