Dateline: November 22, 2022 — This page of the PRP Survival Guide was originally designed to be a repository of experiences and insights shared by the parents/caregivers of children diagnosed with PRP. It was also intended to serve adults diagnosed with PRP as children.

With the help of PRP parents, we 
hope that this webpage will evolve
into a standalone website
dedicated to the effective treatment
of anyone diagnosed with
Juvenile Onset PRP.

Parents and patients, be they children or adults, possesses a wealth of practical knowledge about Juvenile Onset PRP. You are  best positioned to share that knowledge with newcomers.

• An Open Letter from a PRP Mum
• Children and School
  
• A Letter to Isabelle’s School
• Stigmatization
  
• Molly and her Mum — Advocacy at its Best 

In the Queue provides readers with a link to topic-specific POSTS in the PRP Facebook Support Group. Members may click the boldface blue link and read the unedited post. in its entirety. Non-members have two options: join or wait for the original post to be edited and added to the PRP Survival Guide as a bona fide article.

PRP & KIDS — HANDS/FEET
Ranae G — Brandon, Mississippi; March 25, 2019

revised: November 22, 2022