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PRP Gallery of Photos — FEET The challenges we face to body, mind and spirit can be debilitating, demoralizing,  and de-mobilizing. Of ALL the symptoms of pityriasis rubra pilaris I had to endure during my 20-month journey, it was my feet and the impairments to my mobility that topped my list. Swollen. Cracked. Bleeding. Painful. However, once my feet returned […]

From the Editor:Christine G (Zürich, Switzerland) recently shared a healing milestone experienced by her daughter, Molly. On July 3, 2017, Mum and daughter celebrated “the FIRST smelly socks after four years on this bumpy PRP journey! ” As Christine notes, “Smelly socks and drops of sweat on her legs are so precious for us. Only the PRP community can

  Editor’s Note: I know that posting the cartoons shared by members of the PRP Global Community probably violates a copyright laws somewhere, but sometimes a good chuckle is worth getting a cease and desist order. Posted by Tammy O — Clear Lake, Iowa (April 18, 2019)   “First we’re going to run some teststo

The Bright Side of the Dark Side With a battle cry of “Stay positive, no matter what!â€, Rose F (Show Low, AZ) began her PRP journey in October, 2018 at the age of 74 with the onset of symptoms. She joined the PRP Facebook Support Group in November during PRP Awareness Month 2018. On Valentines Day

EDITOR’S NOTE:The late Ron Moody’s performance of Reviewing the Situation has alway been my favorite song from my favorite musical, Oliver!  In 2013, after writing the first stanza of this parody, I’m Reviewing the Diagnosis, my Muse went quiet. While attending an international  dermatology conference in Vancouver (June 2015),  however, I was inspired by a Frenchman, two

WE ARE NOT ALONE by Bill McCue It was a Saturday morning in April 2016 when I realized that too many of my PRP friends in the Land of Hope were suffering too much pain. My house was empty and I felt like writing.xThere was a time with PRP,I thought it had the best of

I saw a spot, just a little dime It was November 2013. I was 16 months into my PRP journey and five months from reaching remission. Since there is no universally accepted definition of remission within the PRP community, I applied my own: med-free and symptom-free. I shared the poem with about 500 PRP patients

Rules & Practices Over the years the PRP Survival Guide has developed Editorial Standards. For example, I always try to put the PRP Survival Guide and pityriasis rubra pilaris in italics.A recent post i the Land of Hope seemed to be a perfect place to start listing the editorial standards that help explain PRP. Disease

  The 30-second answer Bill McCue, Editor It took 16 weeks for a dermatologist and a dermatopathologist to agree on my diagnosis: pityriasis rubra pilaris. A few days later I began a daily regimen of acitretin and  physically exhausting “slatherings” of Clobetasol® and urea lotion (palms and soles), Desonide® (face and ears) and triamcinolone in