It’s time to make history again The PRP global community made history earlier this year. The experiences of over 630 PRP patients have been harvested through a 12-question survey focused on the period from onset of PRP symptoms to the official diagnosis of pityriasis rubra pilaris. The Onset to Diagnosis Survey looks back on your own PRP journey — […]
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We all know that the cause of pityriasis rubra pilaris is unknown. We are also painfully aware of the fact that there is no universally approved treatment option for PRP, e.g., FDA or its international equivalents. That said, at least 15 pharmaceuticals are among those currently prescribed by dermatologists for the treatment of PRP. Unfortunately … What works for
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PRP 2021 COVID-19 Vaccination Survey December 13, 2021, Plano, Texas Over the past 12 months, a total of 2,144 members of the PRP Facebook Support Group have given the Land of Hope an alternative moniker: the Land of Chat. Total number of posts: 1,931 (161 per month) Total number of comments: 33,564 (2,797 per month)
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PRP Gallery of Photos — FEET The challenges we face to body, mind and spirit can be debilitating, demoralizing, and de-mobilizing. Of ALL the symptoms of pityriasis rubra pilaris I had to endure during my 20-month journey, it was my feet and the impairments to my mobility that topped my list. Swollen. Cracked. Bleeding. Painful. However, once my feet returned
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From the Editor:Christine G (Zürich, Switzerland) recently shared a healing milestone experienced by her daughter, Molly. On July 3, 2017, Mum and daughter celebrated “the FIRST smelly socks after four years on this bumpy PRP journey! ” As Christine notes, “Smelly socks and drops of sweat on her legs are so precious for us. Only the PRP community can
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Editor’s Note: I know that posting the cartoons shared by members of the PRP Global Community probably violates a copyright laws somewhere, but sometimes a good chuckle is worth getting a cease and desist order. Posted by Tammy O — Clear Lake, Iowa (April 18, 2019) “First we’re going to run some teststo
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The Bright Side of the Dark Side With a battle cry of “Stay positive, no matter what!”, Rose F (Show Low, AZ) began her PRP journey in October, 2018 at the age of 74 with the onset of symptoms. She joined the PRP Facebook Support Group in November during PRP Awareness Month 2018. On Valentines Day
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EDITOR’S NOTE:The late Ron Moody’s performance of Reviewing the Situation has alway been my favorite song from my favorite musical, Oliver! In 2013, after writing the first stanza of this parody, I’m Reviewing the Diagnosis, my Muse went quiet. While attending an international dermatology conference in Vancouver (June 2015), however, I was inspired by a Frenchman, two
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WE ARE NOT ALONE by Bill McCue It was a Saturday morning in April 2016 when I realized that too many of my PRP friends in the Land of Hope were suffering too much pain. My house was empty and I felt like writing.xThere was a time with PRP,I thought it had the best of
I saw a spot, just a little dime It was November 2013. I was 16 months into my PRP journey and five months from reaching remission. Since there is no universally accepted definition of remission within the PRP community, I applied my own: med-free and symptom-free. I shared the poem with about 500 PRP patients