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Road Work Demographics of the PRP Global Community

6-Research, Uncategorized /

What is PRP? Demographics of the PRP Global Community DATE: ……May 14, 2025TO:………..The PRP Global CommunityFROM: …..Bill McCue, PRP AllianceSUBJECT:  Demographics of the PRP Global Community The quest for a 1,000-member PRP Research Cohort begins with the PRP Global Database and 2,948 PRP patient profiles (aka Kindred Spirits). Survivors (529) Members of the original Facebook-based  […]

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End of the Road?

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What is PRP? DATE: ………June 2, 2025TO: …………..PRP Global CommunityFROM: ………Bill McCueSUBJECT: ….Last Call for Support It has been a long road for me since the onset ofmy version of PRP in early August 2012. But I was one of the lucky travelers. My journey as a PRP patient ended after only 20 months, Moreover,

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PRPSG 003

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What is PRP? It has been a long road for me since the onset of my version of PRP in early August 2012.  I was a lucky one. My journey as a PRP patient ended after 20 months. My Declaration  of Remission (April,8, 2014)  was defined as “no remnants and no PRP-related meds. I was “Home free!” But my PRP journey didn’t

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Path Forward logo with orange arrow.

PRPSG 016

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What is PRP? 16. What is the Last Stage of PRP? Even when the firestorm is contained, and the last of the burning embers have been extinguished, the remnants of the inferno remain, e.g., charred tree trunks and hillsides. Over time, flora and fauna return to the forest. Neither PRP-savvy dermatologists nor the PRP global

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Path Forward logo with orange arrow.

PRPSG 015

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Body Text. Use “Paragraph” and Lorem Ipsum” text.  Lorem ipsum dolor sit amet, consectetur adipiscing elit. Quisque ornare nisi vel pulvinar gravida. Integer velit ipsum, malesuada et tristique vel, pulvinar eu turpis.  Lorem ipsum dolor sit amet, consectetur adipiscing elit. Quisque ornare nisi vel pulvinar gravida. Integer velit ipsum, malesuada et tristique vel, pulvinar eu turpis.  Lorem ipsum

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Shooting star with "Jandina's Wish" text.

Jandina’s Wish

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She wanted to warn her PRP family! Jandina Gelormino joined the Facebook-based PRP Support Group in December 2016 when she was diagnosed with pityriasis rubra pilaris (PRP). She was an active member who authored posts and offered comments. She also donated her time to reach to fellow sufferers. Over the next seven-plus years the signs

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