She wanted to warn her PRP family! Jandina Gelormino joined the Facebook-based PRP Support Group in December 2016 when she was diagnosed with pityriasis rubra pilaris (PRP). She was an active member who authored posts and offered comments. She also donated her time to reach to fellow sufferers. Over the next seven-plus years the signs […]
DONATE TO THE PRP ALLIANCE VIA PAYPALDonate to the PRP Alliance via PayPal. PayPal accepts most major credit and debit cards. You do not need a PayPal account to use PayPal. GO TO: https://www.paypal.com/cgi-bin/webscr?cmd=_s-xclick&hosted_button_id=S43VCCLNGAWQU DONATE TO THE PRP ALLIANCE VIA MAILSend a check or money order made payable to Bill McCue, PRP Alliance to PRP Alliance, 1500 Commerce Drive, Plano,
PRP Awareness Month — 2024 The first annual PRP Awareness event was on November 1, 2013. On that day I was 15 months into my PRP journey and the last month of acitretin. More notable, however, were two historic events — historic for me. The PRP Alliance website was launched. The first PRP global census
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Denver made it obvious: the PRP global community needed a newsletter In March 2014, two weeks before I was officially declared in remission by my dermatologist, Dr. Arturo Domingue, University of Texas Southwestern (Dallas), I attended the xx Annual Meeting of the American Academy of Dermatology.. The details of
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DRAFT — Itching at Night — DRAFT Editor’s Note: The following abstract represents the cooperative efforts of the PRP community and Adobe AI. It began with a post from Rachel G., Mississippi, USA. [Onset Date mm/yyyy; Onset Age: XX]. The objective was to focus on ONE topic: Nighttime itching. I conducted an experiment yesterday (June
PRP Roadmap Memo TO: PRP Global CommunityFROM: Bill McCue, Author & EditorRE: PRP Roadmap DRAFT Edit InstructionsDATE: June 4, 2024 I’ve been writing the PRP Roadmap since the Summer of 2013. Back then I was less than a year into my own PRP journey.
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PRP Roadmap DRAFT The 60-Second PRP Roadmap, Peer Review Edition, is the “OFFICIAL DRAFT” of what will ultimately become the PRP Roadmap, “FIRST EDITION”. With over 340 pages and 49,900 words, it currently represents an easy-to-read, patient-friend overview of what I call… The Predictably Unpredictable Journey for Patient Diagnosed with Pityriasis Rubra Pilaris Please CLICK
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How to Order the Peer Review Workbook Editor’s Note — Until all the “kinks” are worked out, this webpage is offered to PRP patients, caregivers and supporters to simplify the ordering of the Peer Review Workbook. Step One — Go to prpAdvocacy.com A special e-commerce website has been built by Amazon Book Publisher to provide
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Lorem ipsum dolor sit amet, consectetur adipiscing elit. Ut elit tellus, luctus nec ullamcorper mattis, pulvinar dapibus leo. Peer Review Test EXPECTATIONS What do I expect from peer reviewers? Hopefully I will learn more about PRP from kindred spirits who have had their own unique and predictably unpredictable PRP journeys. Hopefully I will also learn
In Memoriam On Saturday morning, January 6, 2024, I read a 32-word update from Margie McGuiness (Lismore, New South Wales, Australia). It was an update of a December 7th update of a post. “My beautiful and strong husband passed away last night from complications with PRP. He fought so hard and so bravely and I
In Memoriam Brian McGuiness Read More »