From the Editor… The challenges we face while being treated for PRP As PRP patients and caregivers, we play an important role in the treatment of PRP. Collectively, the PRP community has a wealth of information from the patient perspective. No one asks what we know. During the period February-May 2015, 28 members of the […]
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Editor’s Note: There have been situations in the past where a PRP patient has needed financial help to access a PRP-savvy dermatologist. This will become less of an issue as we reach out to teaching hospitals and identify PRP-savvy dermatology departments. The Genetic and Rare Disease Information Center offers some additional options in the following tutorial. People
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Editor’s Note: During the past four years I have followed links posted to the PRP Facebook Support Group to evaluate products that might help deal with the burden of pityriasis rubra pilaris. The Genetic and Rare Diseases Information Center has published a number of tutorials that should be required reading for PRP patients and caregivers. “Finding and
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03.09.00 Preserving Patient Access to Treatments EDITOR’S NOTE: Since 2013, the AADA has been a member of the Coalition for Accessible Treatments (CAT), whose key priority is to advocate for enactment of H.R. 1600, the “Patients’ Access to Treatments Act” (PATA) sponsored by Rep. David McKinley (R-WV) and Rep. Lois Capps (D-CA). As a member
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03.08.00 What constitutes an emergency or urgent care situation and what are the most usual treatments?
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Editor’s Note: The following article appeared in Medical Economics in January 2009. Medical Economics did not specifically evaluate these Centers of Excellence for their PRP savviness. Quality medical care can be found in every specialty and in every corner of the country, in hospitals and free clinics, in solo practices, and in sprawling medical centers. Sometimes,
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03.06.04 What Things Should I Know When Selecting a Complementary Health Practitioner — GARD If you’re looking for a complementary health practitioner to help treat a medical problem, it is important to be as careful and thorough in your search as you are when looking for conventional care. Here are some tips to help you in your search:
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03.06.03 What are the issues related to a Complementary Health Approach? — GARD https://nccih.nih.gov/health/decisions/consideringcam.htm Millions of Americans use complementary health approaches. Like any decision concerning your health, decisions about whether to use complementary approaches are important. The National Center for Complementary and Integrative Health (NCCIH) has developed a fact sheet to assist you in your
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Many individuals want to know about healthcare professionals or researchers who have knowledge of their conditions. When a condition is rare, it can be difficult to find someone who has seen many cases. Although there is no list of experts in rare diseases, the guidelines below include several ways to identify healthcare professionals who have
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How to find a PRP-savvy Dermatologist It has been estimated that only one in 20 dermatologists will diagnose or treat pityriasis rubra pilaris during their professional careers. While that estimate may be totally bogus, we can say without fear of contradiction that very few dermatologists will consider themselves PRP savvy. There are at least four reasons
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