6-Research Archives - PRP Survival Guide

Road Work Demographics of the PRP Global Community

What is PRP? Demographics of the PRP Global Community DATE: ……May 14, 2025TO:………..The PRP Global CommunityFROM: …..Bill McCue, PRP AllianceSUBJECT: Demographics of the PRP Global Community The quest for a 1,000-member PRP Research Cohort begins with the PRP Global Database and 2,948 PRP patient profiles (aka Kindred Spirits). Survivors (529) Members of the original Facebook-based […]

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Red umbrella among many black umbrellas.

Intro A picture worth a thousand words

6-Research, 7-PRP Advocacy, Uncategorized / papa.bill

A picture that’s really worth a thousand words. Forget the one-of-a-kind red snowflakes. Forget the one-of-a-kind red fingerprints. Even forget the mythical unicorn with the red snowflake on it’s neck. All have been images used to illustrate the rarity of PRP. Now think umbrellas. One red umbrella in a sea of black umbrellas. Not quite

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PRP Research Cohort List

6-Research, 7-PRP Advocacy, Uncategorized / papa.bill

What is PRP? PRP patients/caregivers who have completed the Onset to Diagnosis Retrospective Survey Number of PRP Research Cohorts as of May 9, 2025: 27 Each day I will update the list of completed surveys using what I would call the “disassembled name” of the person completing the survey. I am making the assumption that

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6-Research

Road Work Demographics of the PRP Global Community

Intro A picture worth a thousand words

PRP Research Cohort List

YOU ARE NOT ALONE. WE ARE ON THIS JOURNEY TOGETHER