7-PRP Advocacy

Editor’s Note: PRP workplace stories don’t begin with “Once upon a time.†They begin with “It was a dark and stormy night….†For most PRP patients, the onset of PRP is so ferocious and relentless that the idea of working is simply not a viable option. Others, for whatever reason, usually financial, make a commitment […]

  Source: PubMed Central® (PMC) is a free full-text archive of biomedical and life sciences journal literature at the U.S. National Institutes of Health’s National Library of Medicine (NIH/NLM). LINK Published in final edited form in JAMA Dermatology (June 1, 2016). Title: Epidemiologic, clinicopathologic, diagnostic and management challenges of Pityriasis Rubra Pilaris Subtitle: A Case Series of 100

Editor’s Note: The following is an Open Letter from Murray Rose regarding PRP Canada and his assignment as PRP Canada Liaison. I was born in Vancouver, British Columbia, Canada in 1950, and have lived and worked in and around Vancouver all my life. Married to Carel, another native Vancouverite,  for 43 years this year, and

   Editor’s Note: This webpage provides an overview of the PRP Global Database as of July 1,  2020. ✱   What PRP-related data have we captured? What is still missing? ✱   Why is the data we seek so important to every member of the PRP global community? Whether you are a patient, loving caregiver (spouse, partner, or parent), an extended family

Editor’s Note: Lura R (East Texas, USA) primed the Land of Chat “Sharing Pump” on June 13, 2020 with an eight-word post. She wrote: “Does everyone else stay cold all the time?” What follows is the response from 18 kindred spirits. PRP Facebookers can access the unabridged version.  If you want to add your own two cents, use “Leave a Reply” at

Under Relentless Pressure Murray Rose Accepts Liaison Assignment Editor’s Note: While “relentless pressure” may be an overstatement, Murray Rose, (Surrey, British Columbia, Canada) has always been on my “short list” to help launch PRP Canada. How short was the list? Murray was the only name. The first symptoms of PRP appeared to Murray in August 2016 at the age