Protected: Missing Onset Date and/or Onset Age
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7-PRP Advocacy
Diet — Anti-inflammatory diet: What to know
Issues related to an anti inflammatory diet The following article appeared in MedicalNewsToday. It was written by Jenna Fletcher and reviewed by Natalie Butler, RD, LD (Sun 3 December 2017). It has been included in the PRP Survival Guide so that PRP patients and caregivers can take advantage of the TRANSLATE button. ✽ What is an
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Financial Assistance
From the Editor The PRP Survival Guide is designed to be a repository of experiences and insights shared by PRP patients and their caregivers. Collectively, the PRP community possesses a wealth of practical knowledge about pityriasis rubra pilaris. Only we are best positioned to harvest that knowledge. Share what you have learned about financial aid opportunities as well as the roadblocks
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The Four Pillars of PRP Communication
From the Editor The first step in the development of a newsletter to serve the needs of the Global PRP Community is to understand our resources. The global PRP community has four pillars of communication. Each pillar serves a specific purpose. Pillar #1 — PRP Facebook Support Group With a current membership of 1,532, the PRP Facebook Community is a
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Protected: PRP Report Version 1
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A First Aid Kit When Life Falls Apart
A first aid kit when your life falls apart Editor’s Note: I always get nervous when a member posts a link to a third-party website. On March 20, Pam A (Tavistock, Devon, England, UK) shared a link to an article written by Helena Önneby. A First Aid Kit When Life Falls Apart. It was ak eeper. “What
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Land of Chat — PAIN & ITCH Feedback
What do you take for the pain and itch of PRP? If you are a member of the PRP Facebook Support Group, CLICK HERE to access the original, unedited post (March 19, 2019) and add your two cents. Roy T — Rehoboth Beach, DE I take gabapentin. 4 or 5 100mg pills a day as
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PRP and Flares
From the Editor The PRP Survival Guide is designed to be a repository of experiences and insights shared by PRP patients and their caregivers. Collectively, the PRP community possesses a wealth of practical knowledge about pityriasis rubra pilaris. Only we are best positioned to harvest that knowledge. Share what you have learned about flares and setbacks. Share articles you feel might
PRP, Swollen Legs and Feet
Issues related to swollen feet and legs Editor’s Note (August 24, 2021) I just read a collection of insightful comments to a recent post to the PRP Facebook Support Group. In part the post read: “My father is suffering … severe lower extremities swelling from feet to upper thigh. He is wondering if anyone had
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National Organization of Rare Disorders (NORD)
From the Editor The PRP Survival Guide is designed to be a repository of experiences and insights shared by PRP patients and their caregivers. Collectively, the PRP community possesses a wealth of practical knowledge about pityriasis rubra pilaris. Only we can harvest that knowledge. Sometimes we find resources worthy of bookmarking. The National Organization of Rare Disorders falls into that
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