7-PRP Advocacy

Issues related to stigmatization Issues related to stigmatization have not been discussed by the global PRP community in any meaningful way. The following is a reading list for those who want to know more. There are NO online documents that focus on stigmatization and PRP. I guess that the “ball us in our court”. From

The Anatomy of Skin Editor’s Note: The following information was submitted by Murray R, Vancouver, British Columbia. A little info on skin. Your skin is the largest organ on your body, made up of several different components, including water, protein, lipids, and different minerals and chemicals. If you’re average, your skin weighs about six pounds.

Editor’s Note Whether you are a newcomer or a seasoned traveler, the more you know about pityriasis rubra pilaris, the better prepared you will be for the journey ahead. The following information has been developed to enlighten PRP patients and their caregivers, family and friends, teachers and school  administrators, and employers and co-workers. This information may also enlighten dermatologists and

  Here’s something that dermatologists are unlikely to share with a newly diagnosed PRP patient: “The combination of topical ointments, cream, and lotions you will be prescribed and the relentless shedding of skin, will put an extraordinary mental and physical strain on you,  caregivers, and push your washing machine to its mechanical limits. For many, the challenges

From the Editor… Just for Fun — While writing the entry for the PRP Glossary of Words & Jargon on the subject of vacuum clearers, e.g., Dyson, Meile, Romba, Hoover, DustBuster, etc., I looked up images and stumbled upon a vacuum cleaner that made me chuckle. Consider this “just for fun”. INTRODUCING the PRP 2020

Editor’s Note: This webpage focuses on the PRP Global Database as of January 31, 2020, the PRP-related data we capture, and why the data is important to every member of the PRP global community. Whether you are a patient, loving caregiver (spouse, partner, or parent), an extended family member, friend or a healthcare professional, the data we have amassed in