Editor’s Note: Each month members of the PRP Facebook Community start between 150 and 200 conversations that range from questions about “what works and what doesn’t work” to general appeals for advice. Since the start of PRP Awareness Month (November 1, 2018), well over 1,200 PRP Facebookers in the Land of Chat have been living up to their moniker. […]
Second Look — April, 2019 Read More »
Editor’s Note: I know that posting the cartoons shared by members of the PRP Global Community probably violates a copyright laws somewhere, but sometimes a good chuckle is worth getting a cease and desist order. Can’t be any worse that the phone call I received from Dr. Golden’s nurse on November 28, 2012 confirming my
From the Editor The PRP Survival Guide is designed to be a repository of experiences and insights shared by PRP patients and their caregivers. Collectively, the PRP community possesses a wealth of practical knowledge about pityriasis rubra pilaris. Only we can harvest that knowledge. Tell us your story. Share what you have learned as a patient diagnosed with PRP. from onset,
PRP Journeys — The Road Less Traveled Read More »
Issues related to feet and impaired mobility The PRP Survival Guide is designed to be a repository of experiences and insights shared by PRP patients and their caregivers. Collectively, the PRP community possesses a wealth of practical knowledge about pityriasis rubra pilaris. Only we are best positioned to harvest that knowledge. Share what you have
PRP, Feet and Impaired Mobility Read More »
EDITOR’S NOTE: While PRP is not life-threatening, it is absolutely life-altering. The journey from onset through redemption is not a high-speed highway with a beautiful view. To the contrary, it can be a treacherous road of pain and discomfort, a seemingly endless series of hills and mountain-like barriers with road blocks and detours to impede your
From the EditorThe PRP Survival Guide is a repository of experiences and insights shared by PRP patients and their caregivers. Collectively, the PRP community possesses a wealth of practical knowledge about pityriasis rubra pilaris. We need to harvest that knowledge for those in need of enlightenment. Share what you have learned about the impact of PRP on hands,
Focus on Fingernails Read More »
Chapter 3 of the PRP Survival Guide has been revised. Please go to DAILY LIFE.
Chapter 3 — Living with PRP Read More »
The PRP Survival Guide has been reorganized. Please go to: PRP 101: The Basics
Chapter 1 — Understanding PRP (redirect) Read More »
October 2, 2024 AN URGENT MESSAGE TOALL MEMBERS OF THEPRP FACEBOOK GROUP With no warning, Facebook removed our group. I immediately appealed. Within a few hours my appeal was summarily denied and our PRP Facebook Group vanished. Nearly 2,400 members lost access to important healthcare information. We have established a PRP Facebook Group v2.
New Member Orientation Facebook Read More »
by Bill McCue, Founder & President, PRP Alliance, Inc. A little bit of history… When I was diagnosed with adult onset PRP on November 28, 2012, I immediately joined the PRPSupport Group and subscribed to their email-based forum. As a newcomer to that group, I was frustrated by the lack of response to the questions I posted.
PRP Community Database Update Grant Read More »