03.09.00 Preserving Patient Access to Treatments EDITOR’S NOTE: Since 2013, the AADA has been a member of the Coalition for Accessible Treatments (CAT), whose key priority is to advocate for enactment of H.R. 1600, the “Patients’ Access to Treatments Act” (PATA) sponsored by Rep. David McKinley (R-WV) and Rep. Lois Capps (D-CA). As a member […]
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03.08.00 What constitutes an emergency or urgent care situation and what are the most usual treatments?
What constitutes an emergency or urgent care situation? Read More »
Editor’s Note: The following article appeared in Medical Economics in January 2009. Medical Economics did not specifically evaluate these Centers of Excellence for their PRP savviness. Quality medical care can be found in every specialty and in every corner of the country, in hospitals and free clinics, in solo practices, and in sprawling medical centers. Sometimes,
What are Centers of Excellence? Read More »
03.06.04 What Things Should I Know When Selecting a Complementary Health Practitioner — GARD If you’re looking for a complementary health practitioner to help treat a medical problem, it is important to be as careful and thorough in your search as you are when looking for conventional care. Here are some tips to help you in your search:
What Things Should I Know When Selecting a Complementary Health Practitioner? Read More »
03.06.03 What are the issues related to a Complementary Health Approach? — GARD https://nccih.nih.gov/health/decisions/consideringcam.htm Millions of Americans use complementary health approaches. Like any decision concerning your health, decisions about whether to use complementary approaches are important. The National Center for Complementary and Integrative Health (NCCIH) has developed a fact sheet to assist you in your
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Many individuals want to know about healthcare professionals or researchers who have knowledge of their conditions. When a condition is rare, it can be difficult to find someone who has seen many cases. Although there is no list of experts in rare diseases, the guidelines below include several ways to identify healthcare professionals who have
How to find a disease specialist — GARD Read More »
EDITOR’S NOTE: The late Ron Moody’s performance of Reviewing the Situation has alway been my favorite song from my favorite musical, Oliver! In 2013, after writing the first stanza of a parody, I’m Reviewing the Diagnosis, my Muse went quiet. While attending a dermatology conference in Vancouver (June 2015),  however, I was inspired by a Frenchman, two
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Orphanet maintains the Orphanet nomenclature of rare diseases, essential in improving the visibility of rare diseases in health and research information systems: each disease in Orphanet is attributed a unique and stable identifier, the ORPHA number. Orphanet uses the European definition of a rare disease, as defined by the European Union Regulation on Orphan Medicinal
What is the ORPHA number for pityriasis rubra pilaris? Read More »
EDITOR’S NOTE: The more we know about the business of dermatology and the regulations which impact the delivery of services business, the more likely we are to understand the challenges they face. The following article was published in the October 2015 issue of On the Road…. The diagnosis and treatment of PRP involves patient and dermatologist.
Were dermatologists ready for ICD-10? Read More »
In January 2015, Eva Bearryman, Junior Communications Manager, EURORDIS, posted the following article about the codification of rare diseases. This is one of those issues where the worldwide PRP community willingly observes from afar. However, knowing how skin diseases are coded helps us understand where we fit in the rare skin disease puzzle. <><><><><><><><><><><><><> Codification means
Does your rare disease have a code? Read More »