 “How long does it take to get from ONSET to REMISSION?†It’s a pretty common question whether the PRP patient has been diagnosed with Adult Onset PRP or Juvenile Onset PRP. When James Shooter walked into St. Bartholomew Hospital in 1828, our disease didn’t have a name. However, I venture that he askednhisdoctor: “How long will […]
Stewart Littlejohn Versus Her Majesty’s Courts and Tribunal Services From the Editor — Stewart Littlejohn has had PRP since June 2017. Unable to work as a chauffeur, he requested UK Employment Support Allowance. Her Majesty’s Courts and Tribunal Service properly convened a 3-person panel to decide Stewart’s fate. The following memorandum was carefully crafted by the PRP Alliance to help
Anatomy of Her Majesty’s Memorandum Read More »
From the Editor (updated 10/16/2020) — The PRP patient database began during the summer of 2013 and has grown to include 2,240 records of which 1,860 are members of the PRP Facebook Support Group and 380 are non-aligned but have a valid email address. Each PRP patient profile focuses on seven datapoints we classify as CORE DATA. 1. Name: Bill McCue (pt) If
7 Reasons Why Your PRP Profile Is Critical Read More »
 Editor’s Note: I know that posting the cartoons shared by members of the PRP Global Community probably violates a copyright laws somewhere, but sometimes a good chuckle is worth getting a cease and desist order. Can’t be any worse that the phone call I received from Dr. Golden’s nurse on November 28, 2012 confirming my
Every so often a member of the PRP Facebook Community shares an inspirational message that should be saved for others to experience. This is the webpage where such messages can be archived for all. The message which has been embedded in the graphic is repeated beneath the image to facilitate translation into over 100-plus languages. See the TRANSLATE button
PRP Gallery of Inspirations Read More »
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Protected: Missing Onset Date and/or Onset Age Read More »
Issues related to an anti inflammatory diet The following article appeared in MedicalNewsToday. It was written by Jenna Fletcher and reviewed by Natalie Butler, RD, LD (Sun 3 December 2017). It has been included in the PRP Survival Guide so that PRP patients and caregivers can take advantage of the TRANSLATE button. ✽  What is an
Diet — Anti-inflammatory diet: What to know Read More »
From the Editor The PRP Survival Guide is designed to be a repository of experiences and insights shared by PRP patients and their caregivers. Collectively, the PRP community possesses a wealth of practical knowledge about pityriasis rubra pilaris. Only we are best positioned to harvest that knowledge. Share what you have learned about financial aid opportunities as well as the roadblocks
Financial Assistance Read More »
From the Editor The first step in the development of a newsletter to serve the needs of the Global PRP Community is to understand our resources.  The global PRP community has four pillars of communication. Each pillar serves a specific purpose. Pillar #1 — PRP Facebook Support Group With a current membership of 1,532, the PRP Facebook Community is a
The Four Pillars of PRP Communication Read More »
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Protected: PRP Report Version 1 Read More »