PRP Survival Guide

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Whack! Whack! Whack!

Lorem ipsum dolor sit amet, consectetur adipiscing elit. Ut elit tellus, luctus nec ullamcorper mattis, pulvinar dapibus leo. Bill McCue (Plano, TX) Whack! Whack! Whack! by Bill McCuey Bill NcCue When I was in 4th grade (circa 1956), my mother, father, brother and I moved to a small, World War II vintage house in Bristol, […]

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Issues related to PAIN

Lorem ipsum dolor sit amet, consectetur adipiscing elit. Ut elit tellus, luctus nec ullamcorper mattis, pulvinar dapibus leo. Issues Related to PRP and PAIN The PRP Survival Guide is a repository of experiences and insights shared by PRP patients and their caregivers. Collectively, the PRP community possesses a wealth of practical knowledge about pityriasis rubra pilaris. We need to

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QOL Research at OHSU

Lorem ipsum dolor sit amet, consectetur adipiscing elit. Ut elit tellus, luctus nec ullamcorper mattis, pulvinar dapibus leo. Abstract Background Pityriasis rubra pilaris (PRP) is a rare and often severe inflammatory skin disorder with major detriment to patients’ quality of life. While past studies have described in detail the morphologic and histopathologic presentations of PRP,

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PRP Show and Tell

A Letter to Isabelle’s School Editor’s Note: On December 17, 2021, Nicole Campbell, mother of Isabelle, shared the following letter with the PRP Support Group. She wrote:  “I have written our daughter’s school an informational letter on her PRP, we are just starting out as she was diagnosed just a few weeks ago so we

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What’s Important?

The following webpage provides an overview of what is important about each question presented on the BASIC webpage. These are the “takeaways” you should have you in your metaphorical toolbox when dealing with family, friends and even dermatologists. As your PRP journey continues, you will become a Subject Matter Expert (SME) when you want to

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PRP Global Database

PRP Global Database — 2022 Update Editor’s Note: This webpage focuses on the PRP Global Database as of January 31, 2020. The PRP-related data we capture is important to every member of the PRP global community. Whether you are a patient, loving caregiver (spouse, partner, or parent), an extended family member, friend or a healthcare

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What Good Came from PRP?

What Good Came from PRP? An oxymoron is a figure of speech that combines contradictory words with opposing meanings, like “old news,” “deafening silence,” or “organized chaos.” Oxymorons may seem illogical at first, but in context they usually make sense. (Source: grammarly.com) On November 2, 2022, a PRP caregiver (HH, Ontario, Canada) posted a question

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PRP Awareness Month Index

2022 PRP Awareness Month Index . Nov 1 — PRP Awareness Month Has Begun The annual, month-long, awareness-building campaign began yesterday in New Zealand and Australia. They are already on Day two.Takeaway #1: There are 1.487 PRP patient profiles in the PRP Global Database. Takeaway #2: We are a global community with valuable resources, PRP Support

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