Peer Review Test

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EXPECTATIONS

What do I expect from peer reviewers?

Hopefully I will learn more about PRP from kindred spirits who have had their own unique and predictably unpredictable PRP journeys.
Hopefully I will also learn about more PRP more from the equally unique perspective of PRP caregivers.

Every PRP patient and caregivers is a subject matter expert with insights and experiences to be considered.

WHEN PRP SUPPORT WAS EMAIL-BASED

I became a subscriber to the email-based PRP support group in November 2012, within 48 hours of getting my PRP diagnosis. The support group was built around a list-serve where subscribers traded emails.

While list-serve technology was clunky, i.e. “clumsy in style, form, or execution”, it was the only game in town. Moreover, in spite of its clunkiness, the list-serve worked. It was a life saver for me and so many others. Communication came in two flavors: questions and answers and venting

Founded in 2006 as a public group, the Facebook-based PRP Support Group became a closed (private, members only group) in September 2013. The technology behind Facebook was more conducive to asking questions and venting. Over time, new categories of communication emerged: howling and pondering

PEER REVIEW INSTRUCTIONS

Step One — Read #98 Howling at the moon

#98 — Howling at the moon

Unlike venting, howling at the moon does not require a response from kindred spirits. The mere howling brings immediate and long-lasting relief and satisfaction to the howler.

It is critical, however, that howlers explain why they are howling. Without background, the howl is just noise.
Some believe that the energized storytelling associated with howling is, in itself, therapeutic to the howler. You be the judge.
As a PRP advocate, I have conjured up advocacy efforts that sounded great when I was alone at my computer but sounded much different when I howled them. Kindred spirits sometimes caution, “Wait, Papa Bill. Not yet”.
Once I howled at the moon, and 250 PRPers completed a PRP survey. That was serendipity at play.
Never howl at the moon and expect anything in return. Just enjoy the echo!

Step Two — Answer the following questions

A. Have you ever howled at the moon?

B. Was there a time you should have howled at the moon bit didn’t?

C. What kept you from howling?

D. What other situations might cause a PRPer (patient or caregiver) to howl at the moon?

Step Three — — Read #158. Venting

Venting is the spontaneous effort by a PRP patient in pain or a caregiver helping a PRP patient in distress to elicit an immediate and empathetic response from one or more kindred spirits in the Land of Hope.

It doesn’t matter whether that pain is real or imagined.
While venting is an important part of the healing process for every PRPer, it should not be shared with passersby at Walmart or Target.
When venting to kindred spirits, the outpouring of support is predictable and heartfelt.
Expect cyber hugs and words of encouragement from seasoned travelers.
Venting should not be confused with Howling, as in Howling at the Moon. While venting is the solicitation of a hug, howling is an effort to resolve a specific problem.

Step Four — Answer the following questions

A. Have you ever vented to the PRP Facebookers?

B. Was there a time you should have vented but didn’t?

C. What kept you from venting?

D. What other situations might cause a PRPer (patient or caregiver) to vent?

Step Five — Share your feedback with me

Just COPY the 8 questions below (Step Two and Step Four),
CLICK Contact at the top of this page,
PASTE the questions in COMMENT or MESSAGE FIELD.
While the NAME and EMAIL ADDRESS are required, feel to use a Fake Name and my email address (papa.bill@mac.com) if you want your comment to be anonymous to me.

HOWLING AT THE MOON