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How to Order the Peer Review Workbook Editor’s Note — Until all the “kinks” are worked out, this webpage is offered to PRP patients, caregivers and supporters to simplify the ordering of the Peer Review Workbook. Step One — Go to prpAdvocacy.com A special e-commerce website has been built by Amazon Book Publisher to provide

Lorem ipsum dolor sit amet, consectetur adipiscing elit. Ut elit tellus, luctus nec ullamcorper mattis, pulvinar dapibus leo. Peer Review Test EXPECTATIONS What do I expect from peer reviewers? Hopefully I will learn more about PRP from kindred spirits who have had their own unique and predictably unpredictable PRP journeys. Hopefully I will also learn

In Memoriam On Saturday morning, January 6, 2024, I read a 32-word update from Margie McGuiness (Lismore, New South Wales, Australia). It was an update of a December 7th update of a post. “My beautiful and strong husband passed away last night from complications with PRP. He fought so hard and so bravely and I

How to Perform a Peer Review First let me thank you for participating in the Peer Review of the 60-Second PRP Roadmap. YOU are a subject-matter expert when it comes to YOUR version of PRP. It is that perspective which is essential to the peer review process. The two-page spread illustrated above is part of

60-Second Table of Contents. The goal of the 60-Second PRP Roadmap is to provide PRP patients, their caregivers and dermatologists an overview of the “predictably unpredictable” PRP journeys faced by the PRP global community. The goal of the Peer Review Workbook is to facilitate feedback from PRP patients, PRP caregivers and PRP-savvy dermatologists recommended by

Peer Review of the 60-Second PRP Roadmap DATE: January, 2024TO: Peer Review ParticipantsFROM: Bill McCue, PRP AllianceSUBJECT: 60-Second PRP Roadmap — Peer Review Workbook No one has ever written a book about pityriasis rubra pilaris from the patient perspective. In fact, no one has ever written about PRP from any perspective.  I am asking you

Peer Review Updates Lorem ipsum dolor sit amet, consectetur adipiscing elit. Ut elit tellus, luctus nec ullamcorper mattis, pulvinar dapibus leo.

It’s time to rise above the noise level Our participation in the GRIDD survey is critically important to the PRP global community. GRIDD is an opportunity for all of us to document the impact pityriasis rubra pilaris on your own lives. 1.  Physical impacts, e.g., pain, itch, mobility, vision, sleep, etc.2.  Daily life impacts , e.g., daily routine, leisure,