Treating PRP

Editor’s Note: A member of the PRP (email) Support Group posted the following message to the PRP-L List which prompted a response from a fellow PRP patient. Original Post “For those who may have missed or who need the reminder, here is a published article that reviews one category of PRP treatment and examines whether […]

03.02.03  Is  UV Light Treatment from Philips a viable treatment option Go to http://www.philips.co.uk/c-m-pe/dermatology/home-psoriasis-treatment

Editor’s Note: Several PRP patients have for acupuncture to be helpful in the treatment of pityriasis rubra pilaris. The PRP Survival Guide has included an overview presented by the National Center for Complementary and Integrative Health. What’s the Bottom Line? How much do we know about acupuncture? There have been extensive studies conducted on acupuncture, especially

03.01.00   Biologicals — Battling for biologics Addressing access challenges for high-reward, high-cost care By Emily Margosian American Academy of Dermatology Content Specialist   For Neil Korman, MD, PhD, professor of dermatology at Case Western Reserve University and director of the Murdough Family Center for Psoriasis, few things are as frustrating as getting notice that

03.00.06  Dermatologist, managing expectations

  Editor’s Note: The Patient’s Voice is the advocacy affiliate of the Patient Advocate Foundation.  We translate the individual experiences of patients who have been denied access to affordable, quality health care into national and state policy initiatives. The following article may help jumpstart a discussion about step therapy and access to affordable treatment options for pityriasis

03.00.03  PRP & Treatment EDITOR’S NOTE The PRP Alliance’s MISSION STATEMENT has three separate “objectives”: (1) To improve the diagnosis of PRP; (2) To identify options for the successful treatment of PRP symptoms; and (3) To promote meaningful research on PRP. The following article focuses on the second mission: To identify options for the successful

Editor’s Note: a patient referral to PRP support group If 27 adults and the parents of children diagnosed with juvenile onset were assembled in a room and asked if their dermatologist told them how to access a PRP patient advocacy organization, only three would raise their hands.   The fact is, 27 fellow PRPers assembled in a

03.00.02  Tips for Finding Financial Aid — GARD https://rarediseases.info.nih.gov/guides/pages/149/tips-for-finding-financial-aid The cost of care for rare medical conditions can place a significant financial burden on families. The following resources may help you find the financial support you need. Does the National Institutes of Health (NIH) provide financial assistance? The NIH is the nation’s medical research agency.