PRP Roadmap Memo
TO: PRP Global Community
FROM: Bill McCue, Author & Editor
RE: PRP Roadmap DRAFT Edit Instructions
DATE: June 4, 2024
I’ve been writing the PRP Roadmap since the Summer of 2013. Back then I was less than a year into my own PRP journey. My understanding of PRP was limited to what I could see in a mirror or learn from members of a now-disbanded email-based PRP support group. My “PRP Learning Curve” accelerated when I joined the Facebook-wing of the PRP Support Group in November 2013 nd began to learn more .. and I started writing.
- On the Road (monthly PRP newsletter): 24 issues (2014-2015), 600 pages
- PRP Survival Guide (permanent online resource): 800-plus articles (2015 to present)
Last July I decided that I needed to write “The Book” while I was still mentally and physically able to do so.
The PRP Roadmap DRAFT was finished in February. Since then I have solicited feedback from kindred spirits in the PRP global community. I wasn’t until late May, however, that I could actually share what I have been revising.
I am far enough along where I can now invite the PRP global community to help me complete the final manuscript for submission to Amazon Book Publisher.
We start with Section One
The PRP Roadmap DRAFT has 342 pages and over 49,900 words. My “forever” objective has been to write a book about PRP from the patient perspective. At this point, however, the perspective is limited to what I experienced during my 20-month journey (August 2013 to April 2014) and what I have learned from the PRP global community over the past 10 year. The truth be told, I’m missing the perspective of rank-and-file members of the PRP global community: Facebookers and non-Facebookers!
The PRP Roadmap DRAFT is organized into six sections.
- Section One: What You Need to Know from the Start
- Section Two: Diagnosing PRP
- Section Three: PRP Treatment Options
- Section Four: PRP Impairments
- Section Five: PRP Glossary of Words, Terms and Jargon
- Section Six: PRP Patient Resources
Section One is your opportunity to share your PRP-related insights and experiences.
Green versus Red
Section One of the PRP Roadmap DRAFT addresses 16 topics. I have allocated 50 pages with enough room for over 10,000 words.
Some of those 10,000 words will be MY words. However, more than half will be the words of PRP patients, PRP caregivers and even PRP-savvy dermatologists.
Think about that! A book about PRP written from the patient perspective.
Lorem Ipsum
I always use “Lorem Ipsum” dummy text to map out whatever I am writing. “Lorem Ipsum” has been the industry’s standard dummy text in printing ever since the 1500s. Here is an example of 30 words based on Lorem Ipsum.
Lorem ipsum aliquam malesuada turpis vitae risus laoreet mollis. Nam egestas facilisis ante, ut consequaipit ultrices. In hac habitasse plateat magna suscipit ultrices. In hac habitasse platea dictumst etiam lacinia.
When you see Lorem Ipsum text in green, that’s text I still have to write.
However, when you see Lorem Ipsum text in red, please consider sharing a PRP-related insight and experience.
In order for the PRP Roadmap to be a truly effective resources for PRP patients, it must reflect OUR combined journeys, not just mine.
Let’s Talk Feedback
Types of feedback
- Out of the Blue Feedback — There is no expectation of a discussion. A PRP patient or caregiver offers his or her insight and clicks SEND.
- Sounding Board —I ask a question in search of an opinion and a one-on-one discussion ensues. I take notes, ponder and usually find a way to incorporate the idea. I really like the expression: “Let’s run it up the flagpole and see if ayone salutes.”
Sources of feedback
- via ZOOM. I love ZOOM because it means “hands free” for me which makes it easier for me to take notes. I can also crank up the audio on my iMac. so I can hear better.
- via email to either bill.mccue@prpAlliance.com or papa.bill@mac.com. I love email because I can copy and paste whatever you offer.
- via posts and comments in the Land of Hope. While this option is time consuming, it usually opens a floodgate of ideas. And again, the coy and paste option is available.
I’ve Been Listening
Based on recent feedback I have received from kindred spirits in the PRP global community I have made “adjustments” to the PRP Roadmap DRAFT.
- Repositioned six topics so the Section One reads more smoothly.
- Added three totally new topics in response to feedback: (1) What’s the NORD PRP Report? (2) Why me? and (3) What is PRP Advocacy
- Expanded 11 topics from one page to a two-page spread
- Expanded Healing Milestones from two 2-page spreads to three 2-page spreads
- Added a total of 20 pages to the 27-page DRAFT of Section One. That’s a significant increase
- More than doubled the word count from 4,700 to a potential of more than 10,000.
Introducing the Block Quote Option
The main purpose of a block quote is to highlight a large section of text that is relevant to the topic at hand AND attributed to a bona fide subject matter expert, e.g., a PRP patient, PRP caregiver or a PRP-savvy dermatologist.
- There are 40 block quote opportunities in Section One
- The word count for a block quote is 70 to 100
- A block quote has a standard format (see image below)
- The attribution of a block quote includes both ame and location, e.g. Bill M, Texas, USA .
- Block quotes are never anonymous.
