From the Editor…
From time to time, PRP patients and caregivers will share insights regarding eye, vision and the need to access an opthamologist for educational purposes only and not for the purpose of rendering medical advice. It is not the intention of the PRP Survival Guide to provide specific medical advice, but rather to provide users with information to better understand and manage the burden of pityriasis rubra pilaris on body, mind and spirit. No individual should indulge in self-diagnosis or embark upon any course of medical treatment that is described in the PRP Survival Guide without first consulting a health care professional.
PRE-EXISTING EYE DISEASE
Tania T — Harz, Germany (Submitted: June 6, 2017)
In July 2014, my husband had a corneal graft due to an eye disease called Fuchs Dystrophy. The new cornea is stitched to the eye ball and left to heal for 18 months.
April 2015 and Julian started with PRP. Of course this affected his eyes greatly and was certainly a worry when it came to the healing of his corneal graft. With extra dryness and skin flaking we were quick to inform the ophthalmologist. It goes without saying that he had never heard of pityriasis rubra pilaris and we again started to educate — yet another — member of the medical profession. Extra drops to moisten the eye and steroid drops to help stop the graft from being rejected.
2017 and presently, Julian is in remission, While the graft did heal, his sight didnt achieve what the ophthalmologist had hoped. He has only 30% vision in his right eye. His left eye will have a corneal graft this August. We hope this is more successful .
I fear PRP has left my husband partly blind, due to the unsuccessful graft. So I share this story because, if anyone with PRP has any other eye issues, please make the time to make extra visits to the eye clinic. Those that have good eye sight should still have then checked regularly.