What is PRP?
PRP patients/caregivers who have completed the
Onset to Diagnosis Retrospective Survey
Number of PRP Research Cohorts as of May 9, 2025: 27
Each day I will update the list of completed surveys using what I would call the “disassembled name” of the person completing the survey. I am making the assumption that the person competing the survey will be the person checking to make sure it was received.
The names of those who completed and submitted a survey will be alphabetized by the first name and the first letter of the last name. For example, my name (Bill McCue) appears as Bill M.
There are two other PRPers named Bill who will hopefully complete the survey. When they do, their names will added to the list as Bill Ma and Bill Mo.
As the PRP Cohort list grows, it will be easy to use FIND to look up your first name + first letter of your last name.
At least, that’s the plan.Bill M and confirm that my name is on the list.
A
Amy G — Anne L
B
Becky E — Bev H — Bill H — Bill M — Bob A
C
None yet
D
None yet
E
None yet
F
None yet
G
None yet
H
None yet
I
Isabell M —
J
Jason B — Jay H— Jonathan C
K
Kary C — Katie B — Kim B —
L
Laura P — Leo M — Linda P — Lois L —
M
None yet
N
Nancy M —
O
None yet
P
None yet
Q
None yet
R
Rose W —
S
Samantha C — Sarah I — Stacey L — Stacey M
T
Terry M —
U
None yet
V
Valerie l — Viv W
W
None yet
X
None yet
Y
None yet
Z
None yet