Issues related to the sun and ultraviolet light
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The following conversation about SUNLIGHT began on January 18, 2017. The unedited version is available to members of the PRP Facebook Support Group.
Jolee P
Has anyone had any experience being in the sun when you have PRP?
Tania T — Harz, Germany
My hubby covered up in the sun, light coloured and light to wear clothing. High factor on face and neck, and wore a hat. He found if he didnt do this he just turned redder and redder within minutes. Pre prp he was a sun worshipper and had a lovely bronze skin tone when out in the sun.
Traci W — Seymour, Indiana
I burn through clothes (sweats due to the “chill” of PRP), under an umbrella with SPF 100 on. Extremely sensitive. I also by the lisa sunblock.
Jean N —Boston, Massachusetts
Before I knew I had PRP, they thought it was eczema for over ten years, the last two or three years if I went in the sun it wasn’t good. My skin would turn red and ashy within a short period of time. I avoid the sun now.
Steven B — Jervis Bay, NSW, Australia
Don’t do it
Karen B — North Wales, United Kingdom
Can’t tolerate the sun. Need shade, need sunblock factor fifty. I buy the type marketed for children ( fewer nasty chemicals! )
Nicola G — Central Otago, New Zealand
I stay out of the sun and cover up. The sun used to really hurt, even just the heat from the sun on covered skin hurt when I was bad. I’ve had a type of skin cancer removed a few years back ( New Zealand has one of the highest rates of skin cancer in the world), the sun is not my friend 🙁
Jeannine E — Clearwater, Florida
I used to be out in the sun all day, every day… Before prp.
Now I have to take vitamin D supplements. I can’t even spend much time on the beach and I live like four miles from it. Hopefully someday I will be able to tolerate the sun.
Trine T — Aarhus, Denmark
I Think it depends on your skin type in on which state you are in as PRP. I used to wear sunfactor 50 and that works for me.and that is even though I am very light skin. I never directly Lie in the Sun but I can do activities with my sunscreen on I can though feel very burned and very warm in my skin but are use a lot of after sun lotion and aloe vera gel. Works for me hopefully it will work for you as well as a person living with PRP I find high life quality in being outside and it really is very important for me and the mood I’m in
Tania T — Harz, Germany
Oh on the flip side to what i said earlier, i do think its important to get sunlight, imho it helps with moods and stress levels…..so, if you are like me and my husband we do as i said in my earlier post or sit in a well shaded area with lots of fluid! (Mines a beer, his is a kids beer or water lol)
Linda B — Oswestry, Shropshire, England
I am heat and light intolerant thanks to PRP. So when it’s hot in the UK, I avoid the sun as much as possible and hang out in the shade/shadows!
Deborah B —Kannapolis, North Carolina
During the acute stage I kept covered with UVB protective clothes and hat while outside, which wasn’t often I was so weak. Now, I wear a nylon sauna suit to stay moisturizers so I don’t get a lot of sun. When I roll sleeves and pant legs up to get sun, I have no negative reaction. The problem is overheating because I don’t sweat.
Traci W — Seymour, Indiana
I would feel the sting of burning within minutes. I am hoping that this summer is better. I love sitting out by a fire, but had to wait until the sun went down.
Mary L — Yarker, Ontario, Canada
I couldnt be when full red head to toe….hurt, upset stomach, had to totally cover but felt the sun like a laser….also i wore 4 layers of clothing…..1 day I thought, i can do this and started almost hyperventilating
Marianne B — San Diego, California
Can’t stand it. Highly sensitive to the sun
Diego T — Barcelona, Spain
I have juvenile onset, 34 years with PRP. For me sun is good, alway being carefully, with sunscreen maximum protection since I am on acitretin.
Every type is different, but my doctor always says uvb ray are good.
Darrell B — California
I always wore long sleeves because mine would get worse probably because of the meds Acitretin
Frazer B — Brodick, Scotland, United Kingdom
Sun is my saviour. Clears me up then back to Scotland after lanzarote for a fortnight and it’s back.
Christine G — Zürich, Switzerland
For Molly, juvenile onset, there is nothing better than sunlight. She starts clearing in days! She is very light skinned and always puts sunscreen factor 50+ on.
Mary H — Novato, California
My husband – intolerable!