PRP Survival Guide

Generic and Rare Diseases (GARD) Information Center

From the Editor
The PRP Survival Guide is designed to be a repository of experiences and insights shared by PRP patients and their caregivers. Collectively, the PRP community possesses a wealth of practical knowledge about pityriasis rubra pilaris. Only we can harvest that knowledge.

Sometimes we find resources worthy of bookmarking. The Generic and Rare Diseases Information Center falls into that category.

✽     Support for patients and families

✽     Understanding autoinflammatory diseases

✽     How to get Involved with research

✽     About clinical studies

✽     Using dietary supplements wisely

✽     Finding financial aid

✽     How to find a disease specialist

If you have any questions about the Generic and Rare Diseases Information Center, please send them via email to

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