7-PRP Advocacy

I’ve never had a problem asking for money for a worthy cause … and I certainly consider PRP Awareness Month a worthy cause. My approach to fundraising assumes that everyone has the right to say “No”. While your decision to unsubscribe from the  further communication is a disappointment, I certainly do not want to send information about PRP where

I’ve never had a problem asking for money for a worthy cause … and I certainly consider PRP Awareness Month a worthy cause. My approach to fundraising assumes that everyone has the right to say “No”. The fact that you do not want to receive further fundraising appeals to support my efforts to prepare for PRP Awareness

by Bill McCue On May 16, 2019, Christina W (Wylie, TX) posted that she had an unscheduled Meet & Greet with Doug F (The Colony, TX) on May 15, 2019. Face-to-face Meet & Greets are not as rare as pityriasis rubra pilaris, but as radio legend Paul Harvey would say, “You need to hear the rest of the

If the Mountain seems to big today If the mountain seems too big today,then climb a hill instead. If the morning brings you sadness,it’s okay to stay in bed. If the day ahead weighs heavyand your plans feel like a curse, there’s no shame in rearranging,don’t make yourself feel worse. If a shower stings like

Topic: Remission (Endgame) Posted by Ron A — East Sussex , England (12/28/2017) Let’s talk about remission. How long does it take? Christine G— Zürich, Switzerland Sorry, I am the first one who respond to your post and I am the one who will probably bring the not so good news. Juvenile onset is some

Editor’s Note: Once diagnosed with pityriasis rubra pilaris, patients face the daily challenges of body, mind and spirit. The PRP Art Gallery provides an outlet for the graphic representation of our journey. Other links to soothe the spirit of all PRP travelers. Art can connect and help us heal   Permission to reprint this painting granted by

From the Editor… Having written 24 PRP community newsletters (598 pages) during the period April 1, 2014 to October 1, 2015, the prospect of writing eight more issues between now (May, 2019) and December) gives me pause. Suffice it to say, the effort requires an extra and sustained commitment of time and effort. The May