7-PRP Advocacy

Whether you are the PRP patient, a caregiver/carer, or designated surrogate, thank you for taking the time to update the “core data” associated with your PRP patient profile. If you have any questions, please email me. [email protected]    

The NORD PRP Report The NORD PRP Report was revised in 2017 by PRP patients and reviewed by a team of healthcare professionals including a past president of the American Academy of Dermatologists, the Chair of the Dermatology Department at Thomas Jefferson University, and current Vice Chair of the Dermatology Department at Oregon Health and

by Steve Gray — Norfolk, England Oh you horrible rare PRP.Why did you choose us? You came from nowhereand hit us like a bus. You made us all so red,and shed so much skin. You made us feel itchy,but in time, you won’t win. You have affected our livesin such a bad way; You made

— Bill McCue, PRP Alliance IMHO — a newly diagnosed PRP patient in 2019 has access to more patient-friendly information than I had access to in 2012 It was the evening of November 28, 2012 and I was in a state of escalating FEAR, still trying to comprehend my PRP diagnosis. All I really knew