What are the issues related to caregivers?
04.05.00 caregivers, issues related to
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What are the issues related to “blood tests”?
04.04.00 blood tests, labs
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What are the issues related to bathing and showering?
04.03.00 bathing, showering What are the issues related to bathing and showering? Jan T https://www.facebook.com/groups/15865278115/permalink/10155167641708116/ April 28 at 10:39am We had a water main break so I have had only sponge baths for two and a half days. This morning, I have almost NO flakes after having massive flaking the past month. Has anyone found
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What are the issues related to PRP and alcohol?
04.01.00 Issues related to PRP and alcohol? Can PRP patients drink alcohol? Have anyone had any bad side effects from drinking a glass of wine while taking acitretin? https://www.facebook.com/groups/15865278115/permalink/10155123652973116/
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Support for patients and families — GARD
From the Editor… The following article details the support that patients suffering from rare diseases — and their families — can access. As you read, recognize the role played by the PRP Alliance, PRP Facebook Support Group, PRP Community on RareConnect and even the PRP Survival Guide. Clearly, you are not alone; we are on this journey together.
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Seven ways to embrace the PRP community
04.00.02 Seven Ways to Embrace the PRP Community Some PRPers will find their way to remission within a few years, some even sooner. Others must prepare for a much longer siege. No matter where you fall on the PRP Continuum, the journey begins anew today. Here are the first seven steps on your journey. 1st:
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Biologicals — The efficacy of Tumor Necrosis Factor (TNF)
Editor’s Note: A member of the PRP (email) Support Group posted the following message to the PRP-L List which prompted a response from a fellow PRP patient. Original Post “For those who may have missed or who need the reminder, here is a published article that reviews one category of PRP treatment and examines whether
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Is UV Light Treatment from Philips a viable PRP treatment option?
03.02.03 Is UV Light Treatment from Philips a viable treatment option Go to http://www.philips.co.uk/c-m-pe/dermatology/home-psoriasis-treatment
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What do I need to know about acupuncture?
Editor’s Note: Several PRP patients have for acupuncture to be helpful in the treatment of pityriasis rubra pilaris. The PRP Survival Guide has included an overview presented by the National Center for Complementary and Integrative Health. What’s the Bottom Line? How much do we know about acupuncture? There have been extensive studies conducted on acupuncture, especially
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Battling for biologics
03.01.00 Biologicals — Battling for biologics Addressing access challenges for high-reward, high-cost care By Emily Margosian American Academy of Dermatology Content Specialist For Neil Korman, MD, PhD, professor of dermatology at Case Western Reserve University and director of the Murdough Family Center for Psoriasis, few things are as frustrating as getting notice that
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