04.06.00 clothing, sauna suits 04.06.01 Washing triamcinolone ointment and other crud out of clothing If you are throwing ointment-stained clothing away, think again. Judy M (hubby Troy is the PRPer in the family) has a recipe for getting that ointment out and extending the life of clothing. Literally a “simple” solution. Start with a five-gallon bucket […]
What are the issues related to PRP and clothing? Read More »
04.05.00 caregivers, issues related to
What are the issues related to caregivers? Read More »
04.04.00 blood tests, labs
What are the issues related to “blood tests”? Read More »
04.03.00 bathing, showering What are the issues related to bathing and showering? Jan T https://www.facebook.com/groups/15865278115/permalink/10155167641708116/ April 28 at 10:39am We had a water main break so I have had only sponge baths for two and a half days. This morning, I have almost NO flakes after having massive flaking the past month. Has anyone found
What are the issues related to bathing and showering? Read More »
04.01.00 Issues related to PRP and alcohol? Can PRP patients drink alcohol? Have anyone had any bad side effects from drinking a glass of wine while taking acitretin? https://www.facebook.com/groups/15865278115/permalink/10155123652973116/
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From the Editor… The following article details the support that patients suffering from rare diseases — and their families — can access.  As you read, recognize the role played by the PRP Alliance, PRP Facebook Support Group, PRP Community on RareConnect and even the PRP Survival Guide. Clearly, you are not alone; we are on this journey together.
Support for patients and families — GARD Read More »
04.00.02 Seven Ways to Embrace the PRP Community Some PRPers will find their way to remission within a few years, some even sooner. Others must prepare for a much longer siege. No matter where you fall on the PRP Continuum, the journey begins anew today. Here are the first seven steps on your journey. 1st:
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Editor’s Note: A member of the PRP (email) Support Group posted the following message to the PRP-L List which prompted a response from a fellow PRP patient. Original Post “For those who may have missed or who need the reminder, here is a published article that reviews one category of PRP treatment and examines whether
Biologicals — The efficacy of Tumor Necrosis Factor (TNF) Read More »
03.02.03 Is UV Light Treatment from Philips a viable treatment option Go to http://www.philips.co.uk/c-m-pe/dermatology/home-psoriasis-treatment
Is UV Light Treatment from Philips a viable PRP treatment option? Read More »
Editor’s Note: Several PRP patients have for acupuncture to be helpful in the treatment of pityriasis rubra pilaris. The PRP Survival Guide has included an overview presented by the National Center for Complementary and Integrative Health. What’s the Bottom Line? How much do we know about acupuncture? There have been extensive studies conducted on acupuncture, especially
What do I need to know about acupuncture? Read More »