papabill

Pityriasis rubra pilaris (PRP) is a group of rare skin disorders that cause inflammation and shedding of the skin. Typically, PRP appears first as a small spot somewhere on the body and then spreads elsewhere. It will impact different parts of the body in different ways for unpredictable periods of time. PRP patients and their […]

As you all know, I began building a PRP database during the Spring of 2013 in an effort to inspire researchers in dermatology to focus their attention on PRP. I believed then, as I do now, that a robust PRP Community Database would become a channel of communication no researcher could replicate. It’s part of

HOLD FOR RELEASE Pityriasis rubra pilaris (PRP) is a rare skin disease of unknown etiology, which medically is often difficult to treat. For a patient with PRP, the disease can completely alter one’s ability to work and attend school. Quality of life is often greatly reduced, and many patients experience profound psychological impact due to

Editor’s Note: Before we start — have you completed your PRP Patient Profile yet? Go directly to: https://conta.cc/2IOBEUA or learn why your PRP patient profile is so important.   There have been two recent questions, each embedded in an unrelated post. PRP Facebookers: Leith W (Queensland, Australia) and Marilyn C (Irvington, AL) asked: How do I find

From the Editor… Nearly two years ago (May 17, 2017) I received an email from Dr. Teri Greiling,  Assistant Professor of Dermatology at Oregon Health and Science University in Portland, Oregon. Like every PRP patient and caregiver, Dr. Greiling lamented the fact that not a single therapeutic trial had ever been conducted for patients with PRP. She also