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— Bill McCue, PRP Alliance IMHO — a newly diagnosed PRP patient in 2019 has access to more patient-friendly information than I had access to in 2012 It was the evening of November 28, 2012 and I was in a state of escalating FEAR, still trying to comprehend my PRP diagnosis. All I really knew

I’ve never had a problem asking for money for a worthy cause … and I certainly consider PRP Awareness Month a worthy cause. My approach to fundraising assumes that everyone has the right to say “No”. While your decision to unsubscribe from the  further communication is a disappointment, I certainly do not want to send information about PRP where

I’ve never had a problem asking for money for a worthy cause … and I certainly consider PRP Awareness Month a worthy cause. My approach to fundraising assumes that everyone has the right to say “No”. The fact that you do not want to receive further fundraising appeals to support my efforts to prepare for PRP Awareness

by Bill McCue On May 16, 2019, Christina W (Wylie, TX) posted that she had an unscheduled Meet & Greet with Doug F (The Colony, TX) on May 15, 2019. Face-to-face Meet & Greets are not as rare as pityriasis rubra pilaris, but as radio legend Paul Harvey would say, “You need to hear the rest of the

If the Mountain seems to big today If the mountain seems too big today,then climb a hill instead. If the morning brings you sadness,it’s okay to stay in bed. If the day ahead weighs heavyand your plans feel like a curse, there’s no shame in rearranging,don’t make yourself feel worse. If a shower stings like

Topic: Remission (Endgame) Posted by Ron A — East Sussex , England (12/28/2017) Let’s talk about remission. How long does it take? Christine G— Zürich, Switzerland Sorry, I am the first one who respond to your post and I am the one who will probably bring the not so good news. Juvenile onset is some