Protected: Clinic Tool — Quality of Life Update
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Protected: Is a Timely Diagnosis of PRP
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Protected: In the Queue with Murray
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Quality of Life Index
Why should the PRP global community be concerned about the Dermatology Life Quality Index (DLQI)? Why o]invest so much time and effort helping GlobalSkin and OHSU build a better mousetrap. Quite simply — it SUCKS! Abstract on the Dermatology Life Quality Index (DLQI) — Finley, A.Y. The following five statements represent the ABSTRACT published in May 1994
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PRP Research — OHSU
OHSU, PRP and Quality of Life Research Dr. Teri Greiling is an OHSU dermatologist who sees patients from across a wide spectrum of dermatologic diseases and has a special interest in autoimmunity and PRP. She has led two investigator-initiated drug trials investigating treatments for PRP and helped author the National Organization for Rare Disorders consensus
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I hate holly more than PRP
I hate holly more than PRP! by Bill McCue (August 2018) What does holly have to do with pityriasis rubra pilaris? And what does holly have to do with HOPE and REMISSION. Let me explain.My house has holly bushes; too many holly bushes. Oh, how I hate holly bushes! But they look great from afar.
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PRP & Mental Wellness
Issues related to mental wellness IThe PRP Survival Guide is a repository of experiences and insights shared by PRP patients and their caregivers. Collectively, the PRP community possesses a wealth of practical knowledge about pityriasis rubra pilaris. We need to harvest that knowledge for those in need of enlightenment. Our emotional health is every bit as important
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STANDING UP for your health — Principle 5
You Don’t Have To Do It Alone!Principle 5 Editor’s Note — The official unveiling of Principle 5 is scheduled for February 2, 2023.
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Diagnositic Coding
PRP and DIAGNOSTIC CODING ICD Coding for Rare Diseases from GARD Does your rare disease have a code? Were dermatologists ready for ICD-10? What is the ORPHA Number for PRP
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How is Pityriasis Rubra Pilaris pronounced?
How is pityriasis rubra pilaris pronounced? This is not as stupid a question as it might sound. When a dermatologist confirms the diagnosis as “pityriasis rubra pilaris or PRP” we too often hear only the acronym “PRP”. That’s easy to say. I confirmed the proper spelling of pityriasis rubra pilaris from the paperwork I brought home from the
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