PRP Survival Guide

papa.bill

PRP and Comorbidities

Examples: Diabetes, cellulitis, edema, cardiac issues, DVT From the Editor The PRP Survival Guide is designed to be a repository of experiences and insights shared by PRP patients and their caregivers. Collectively, the PRP community possesses a wealth of practical knowledge about pityriasis rubra pilaris. Only we are best positioned to harvest that knowledge. Share what you have learned about […]

PRP and Comorbidities Read More »

PRP and Clothing

Issues related to clothing The PRP Survival Guide is designed to be a repository of experiences and insights shared by PRP patients and their caregivers. Collectively, the PRP community possesses a wealth of practical knowledge about pityriasis rubra pilaris. Only we are best positioned to harvest that knowledge. Share what you have learned as a PRP patient or caregiver

PRP and Clothing Read More »

PRP and Caregivers

  The PRP Survival Guide is designed to be a repository of experiences and insights shared by PRP patients and their caregivers. Collectively, the PRP community possesses a wealth of practical knowledge about pityriasis rubra pilaris. Only we can harvest that knowledge. Share what you have learned as a PRP caregiver. Share articles you feel might be worth reading or websites

PRP and Caregivers Read More »

PRP and Alcohol

PRP and Alcohol PRP and Alcohol The PRP Survival Guide is designed to be a repository of experiences and insights shared by PRP patients and their caregivers. Collectively, the PRP community possesses a wealth of practical knowledge about pityriasis rubra pilaris. Only we can harvest that knowledge. Share what you have learned about PRP and alcohol as

PRP and Alcohol Read More »

Advocacy issues related to diagnosing PRP

Diagnosing PRP — The Advocacy Mission Editor’s Note: The timely and accurate diagnosis of pityriasis rubra pilaris is a goal shared by the PRP global community. We are  confident that when a dermatologist suspects PRP and specifically instructs the dermatopathologist to look  for evidence — a diagnosis  supporting clinical observations is the result. Patient Self-Advocacy

Advocacy issues related to diagnosing PRP Read More »

How do we track the Global PRP Community?

From the Editor… Prior to November 2013, there was no concerted effort by healthcare professionals or PRP patients to gather information about the PRP community. The first PRP Global Census was based on a mailing list extracted from over 29,000 emails archived by the PRP Support Group founded in 1997. As a member/subscriber to the PRP-L List, I was authorized

How do we track the Global PRP Community? Read More »