Issues related to swimming The PRP Survival Guide is a repository of experiences and insights shared by PRP patients and their caregivers. Collectively, the PRP community possesses a wealth of practical knowledge about pityriasis rubra pilaris. We need to harvest that knowledge for those in need of enlightenment. Share what you have learned about PRP as a patient […]
PRP, Swimming — Pools, Lakes & Oceans Read More »
Issues related to sweating and thermoregulation The PRP Survival Guide is a repository of experiences and insights shared by PRP patients and their caregivers. Collectively, the PRP community possesses a wealth of practical knowledge about pityriasis rubra pilaris. We need to harvest that knowledge for those in need of enlightenment. For many of us, the cessation of sweating comes
PRP, Sweating & Thermoregulation Read More »
 Issues related to the sun and ultraviolet light The PRP Survival Guide is a repository of experiences and insights shared by PRP patients and their caregivers. Collectively, the PRP community possesses a wealth of practical knowledge about pityriasis rubra pilaris. We need to harvest that knowledge for those in need of enlightenment.Share what you have learned about
PRP, Sunlight and UV Exposure Read More »
Issues related to stress and triggers The PRP Survival Guide is a repository of experiences and insights shared by PRP patients and their caregivers. Collectively, the PRP community possesses a wealth of practical knowledge about pityriasis rubra pilaris. We need to harvest that knowledge for those in need of enlightenment. Share what you have learned about PRP
PRP, Stress and Triggers Read More »
Issues related to sleep and sleep deprivation The PRP Survival Guide is a repository of experiences and insights shared by PRP patients and their caregivers. Collectively, the PRP community possesses a wealth of practical knowledge about pityriasis rubra pilaris. We need to harvest that knowledge for those in need of enlightenment.Share what you have learned about PRP
PRP, Sleep & Sleep Deprivation Read More »
Issues related to shedding, flaking and peeling The PRP Survival Guide is a repository of experiences and insights shared by PRP patients and their caregivers. Collectively, the PRP community possesses a wealth of practical knowledge about pityriasis rubra pilaris. We need to harvest that knowledge for those in need of enlightenment. Share what you have learned
Shedding and Flaking Read More »
PRP and scalp-related issues Written by Bill McCue, Editor INTRODUCTION As a PRP patient advocate I have come to appreciate the myriad of challenges that we face after the onset and diagnosis of pityriasis rubra pilaris. One of the most universal indignities is the assault on the scalp that may range from fine scaling that
Scalp and related Issues — Tutorial Read More »
Issues related to relapses and setbacks The PRP Survival Guide is a repository of experiences and insights shared by PRP patients and their caregivers. Collectively, the PRP community possesses a wealth of practical knowledge about pityriasis rubra pilaris. We need to harvest that knowledge for those in need of enlightenment. Share what you have learned about PRP as
PRP, Relapses and Setbacks Read More »
From the Editor The PRP community needs a PRP Patient Registry. The following is a broad overview of issues related to Patient Registries and Natural History Studies. WHAT IS A PATIENT REGISTRY ✽ A registry is a collection of information about individuals, usually focused around a specific diagnosis or condition. – NIH ✽ Contact registries
PRP Patient Registry Read More »
