What is PRP?
Demographics of the
PRP Global Community
DATE: ……May 14, 2025
TO:………..The PRP Global Community
FROM: …..Bill McCue, PRP Alliance
SUBJECT: Demographics of the PRP Global Community
The quest for a 1,000-member PRP Research Cohort begins with the PRP Global Database and 2,948 PRP patient profiles (aka Kindred Spirits).
- Survivors (529)
Members of the original Facebook-based PRP Support Group that was (I call it Version On)roupversionof the original Facebook-based PPRP Support Group (version 1) who joined the new Facebook-based PRP Support Group (version 1) after October 2, 2024.
- Newcomers (313)
PRPers who joined the new Facebook-based PRP Support Group (version 2) but were never members of version 1. - Missing in Action (1,443)
Members of the original Facebook-based PPRP Support Group (version 1) who joined the new Facebook-based PRP Support Group (version 1) who have yet to find their way to the new Facebook-based PRP Support Group (version 2) - Lost in Space (663)
PRPers with a valid email address but are not members of either the old or new Facebook-based PRP Support Groups.
Take A Closer Look
We are not building the PRP Research Cohort from scratch. We already have data. But the data needs to be updated and expanded. Remember — we are reaching out to 2,948 PRP patients
Location: 2,553 respondents
- USA: 1,485 respondents
- International: 1,068 respondents
Onset Age: 1,322` respondents
- Adult Onset PRP: 1,099 (83%)
- Juvenile Onset PRP: 223 (17%)
Onset Date: 1,477 respondents
Diagnosis Date: 632 respondents
Capturing the Onset Date and the Diagnosis Date allows us to identify when the PRP diagnosis exceeds two months. The Onset to Diagnosis Survey will also identify skin disorders that mimic PRP can contribute to the delay of a proper diagnosis.