PRP Survival Guide

IMG What Works.png

We all know that the cause of pityriasis rubra pilaris is unknown. We are also painfully aware of the fact that there is no universally approved treatment option for PRP, e.g., FDA or its international equivalents.

That said, at least 15 pharmaceuticals are among those currently prescribed by dermatologists for the treatment of PRP. Unfortunately … What works for one doesn’t work for all.

The purpose of the What Works survey is to focus on WHAT WORKS:

  • With this survey we will DOCUMENT the efficacy of specific pharmaceuticals used in the treatment of PRP. As PRP patients and caregivers ponder treatment options, let’s give them information they can use.
  • We will SHARE what we learn with the PRP global community,
  • We will SHARE what we learn with dermatologists worldwide.

A REMINDER ABOUT SECURITY

Since the summer of 2013, there has been a relentless effort to build a database of PRP patient profiles, e.g., names (patients and caregivers), email addresses, locations, onset information and much more. Today, the PRP Global Database maintains nearly 3,300 PRP patient profiles.

During the past eight years there has NEVER BEEN A BREACH in the privacy of the information held securely in the PRP Global Database. The data is disassociated with NAMES. The focus is on NUMBERS, how many this and how many that. Let’s begin.

PATIENT NAME (first/last)
0/50
EMAIL ADDRESS: [email protected]
0/50
LOCATION (city, state/province, country). “Province” applies specifically to Canadians and Australians. Canada and Australia.
0/50
PERSON COMPLETING SURVEY
 
 
 

SECTION 1

We have tried to keep the What Works Survey as simple as possible. How simple? This survey requires only 15 clicks as indicated by the red (*) asterisks to the left of the pharmaceutical names and only ONE optional comment at the end.

RETINOIDS

(1) Acitretin
 
 
 
(2) Isotretinoin – Accutane®
 
 
 

IMMUNOSUPPRESSANTS

(3) Methotrexate
 
 
 
(4) Cyclosporine
 
 
 

BIOLOGICS THAT WORKED

(5) Adalimumab/Humira®
 
 
 
(6) Certolizumab/Cimzia®
 
 
 
(7) Dupilmab/Dupixent®
 
 
 
(8) Etanercept/Enbrel®
 
 
 
(9) Golimumab/Simponi®
 
 
 
(10) Guselkumab/Tremfya®
 
 
 
(11) Infliximab/Remicade®
 
 
 
(12) Ixekizumab/Taltz®
 
 
 
(13) Ustekinumab/Stelara®
 
 
 
(14) Secukinumab/Cosentyx®
 
 
 

OTHER NON-BIOLOGICS

Apremilast (Otezla®) is a small molecule phosphodiesterase 4 (PDE4) inhibitor but is not classified as a biologic, retinoid or immunosuppressant. It is an oral tablet commonly used to treat plaque psoriasis, psoriatic arthritis, and oral ulcers associated with Behçet’s Disease.

(15) Apremilast/Otezla®
 
 
 

SECTION 2

Please share any relevant information about YOUR experience with ANY of the 15 pharmaceuticals listed above whether they WORKED or DID NOT WORK. If you were not prescribed ANY of the PRP-specific medications listed above, simply enter NO MEDS.
0/500

Thank you for your participation

in the 2021 What Works Survey

The findings (Numbers, Not Names)

will be published in the PRP Survival Guide

at the conclusion of PRP Awareness Month

(November 30, 2021)