Peer Review of the 60-Second PRP Roadmap
DATE: January, 2024
TO: Peer Review Participants
FROM: Bill McCue, PRP Alliance
SUBJECT: 60-Second PRP Roadmap — Peer Review Workbook
No one has ever written a book about pityriasis rubra pilaris from the patient perspective. In fact, no one has ever written about PRP from any perspective. I am asking you to make medical history with me.
My PRP journey began in early August 2012 with the appearance of a red spot on my forehead. It took almost four months before I was properly diagnosed with PRP. I had no roadmap. I learned about PRP from other PRP patients.
What is the Peer Review Workbook?
- The Peer Review Workbook is a near final draft of the 60-second PRP Roadmap scheduled for publication in February, 2024 and reflects the insights and experiences shared by PRP patients and caregivers since 1997.
Who will participate in the Peer Review?
- Members of the PRP Support Group (patinets and caregivers)
- Dermatologists who are currently treating PRP patients or have treated PRP patients in the past
What should you be reviewing?
- What’s missing or incomplete? I can add it.
- What’s incorrect? I can fix it.
- What’s confusing? I can make it make sence.
How to save what you have reviewed?
- Space has been allocated at the end of each Section and each Appendix for peer reviewers to jot down any observations you might want to share.
- “Empty box” bullets have been used to make it easier to “tag” a problem or issue needing to be reported.
- Write notes in the margins. This is a workbook!
How will we share what you have learned?
- Online survey
- ZOOM Focus Groups scheduled to accommodate ALL time zones.
Then what?
- The comments of all peer reviewers will be integrated into the FINAL manuscript and delivered to Amazon Book Publisher for publication in February 2024 before Rare Disease Day.
More information is just a click away.
- 60-Second PRP Roadmap Introduction CLICK
- How to Peer Review a PRP Brief. CLICK
- 60-Second Table of Contents. CLICK