From the Editor… PRP Awareness Month (November 1-30) provides an opportunity for the PRP community to revisit the PRP Survival Guide and reassess the current information. What’s missing? What information do you want to have available. What questions are in need of answers? Share your thought via email to editor@prpSurvivalGuide.org. The focus here is on treatment options (prescription drugs and topicals) as well as managing our expectations. We all learn early in the journey that treatment is a roll of the dice — what works for one doesn’t work for all. We also learn that not all dermatologists are PRP savvy.
The Basics
✓ What are the treatment options for PRP? ✓ Laddered Treatment for Pityriasis Rubra Pilaris (Dermatology Times) ✽ What are PRP patient resources a secret? ✽ Is PRP and autoinflammatory or autoimmune disease? How bad is my version of PRP going to get? Finding and evaluating online resources The challenges we face treating PRP ✽ Testing your liver — Food for thought
blood work, labs >>> ASSIGN TO TREATMENT
calculating coverage (Rule of Nines) >>> ASSIGN TO TREATMENT
clinic self-advocacy, e.g., preparation, participation, education >>>Treating PRP
COVID-19 Clearinghouse >>> TREATING PRP
comorbidities, impact on treating PRP >>> Treating PRP
Genetic and Rare Disease Information Center >>> Move to BASICS
liver, testing >>> Move to treatment
More on retinoids
What do I need to know about acitretin/Soriatane? What do I need to know about isotretinoin/Accutane?
More on immunosuppressants
What do I need to know about cyclosporine? What do I need to know about methotrexate?
More on biologicals
What do I need to know about etanercept/Enbrel? What do I need to know about secukinumab/Cosentyx? What do I need to know about adalimumab/Humira? What do I need to know about infliximab/Remicade? What do I need to know about ustekinumab/Stelara? What do I need to know about ixekizumab/Taltz? What do I need to know about golimumab/Simponi? What do I need to know about certolizumab/Cimzia? What do I need to know about guselkumab/Tremfya?
What do I need to know about dupilmab/Dupixent?
✽ Huffington Post (July 10.2106): New Drug Offers Hope To Millions With severe eczema
✽ Dupilmab website © 2019 Sanofi and Regeneron Pharmaceuticals, Inc.
The efficacy of Tumor Necrosis Factor (TNF)
Other pharmaceuticals
What do I need to know about apremilast/Otezla? What do I need to know about gabapentin? What do I need to know about hydroxyzine for itch relief? What do I need to know about prednisone? Patient feedback on prednisone NEW (December 7, 2018)
More on other therapies?
What do I need to know about prescribed topicals? What do I need to know about UV light therapy? The challenges of step therapy?
Complementary Health Options
What are the issues related to a Complementary Health approach? Things to know when selecting a Complementary Health option What do I need to know about acupuncture?
Financial Issues
Cost of Healthcare — Horror Stories Help with Travel Costs
Finding Professional Healthcare Resources
How to Find a Disease Specialist — GARD How to find PRP-savvy dermatologist? What are PRP Centers of Excellence?