Access to Financial Relief and Support in Canada
Editor’s Note: Murray Rose wants to better understand the challenges PRP patients in Canada face when attempting to get financial relief and support. Some of what he will learn is available on the Government of Canada website. But the best information is what he will hopefully learn from fellow Canadians who, like him, have been diagnosed with PRP.
There are questions to be answered.
❇︎ What are the steps to make a disability claim in Canada?
❇︎ What financial relief is available to PRP patients in Canada?
❇︎ What specific roadblocks do PRP patients in Canada encounter?
❇︎ Are there any Canadians with financial relief success stories?
A Path Forward
The Canadian Organization for Rare Disorders (CORD) believes that now is the time to act to provide hope and treatment to Canadians and their families who are impacted by a rare disease.
They explain, “Right now, the approach to rare diseases is fragmented across the country and this means Canadian families with rare illnesses are facing extraordinary challenges. These include misdiagnosis, unnecessary surgeries, social isolation, financial hardship, lack of treatment options and early death. These are the same challenges faced by Canadians with “non-rare” conditions but the impact is often much more severe.
About 1 in 12 Canadians, two-thirds of them children, are affected by a rare disease. But because each specific rare disease affects only a small number of individuals, scientific understanding and clinical expertise may be limited and fragmented across the country. We are asking that patients with rare diseases get the same kind of care and consideration as those with more common illnesses
While we aren’t exactly sure what Murray will learn or PRP Canada may accomplish, it is a fight worth the effort.