We all know that the cause of pityriasis rubra pilaris is unknown. We are also painfully aware of the fact that there is no universally approved treatment option for PRP, e.g., FDA or its international equivalents. That said, at least 15 pharmaceuticals are among those currently prescribed by dermatologists for the treatment of PRP. Unfortunately … What works for one doesn’t work for all. The purpose of the What Works survey is to focus on WHAT WORKS: - With this survey we will DOCUMENT the efficacy of specific pharmaceuticals used in the treatment of PRP. As PRP patients and caregivers ponder treatment options, let’s give them information they can use.
- We will SHARE what we learn with the PRP global community,
- We will SHARE what we learn with dermatologists worldwide.
A REMINDER ABOUT SECURITY Since the summer of 2013, there has been a relentless effort to build a database of PRP patient profiles, e.g., names (patients and caregivers), email addresses, locations, onset information and much more. Today, the PRP Global Database maintains nearly 3,300 PRP patient profiles. During the past eight years there has NEVER BEEN A BREACH in the privacy of the information held securely in the PRP Global Database. The data is disassociated with NAMES. The focus is on NUMBERS, how many this and how many that. Let’s begin. |