PRP Roadmap DRAFT The 60-Second PRP Roadmap, Peer Review Edition, is the “OFFICIAL DRAFT” of what will ultimately become the PRP Roadmap, “FIRST EDITION”. With over 340 pages and 49,900 words, it currently represents an easy-to-read, patient-friend overview of what I call… The Predictably Unpredictable Journey for Patient Diagnosed with Pityriasis Rubra Pilaris Please CLICK […]
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PRP Perspectives: Pain by Jan Tennant, Senior Editor, PRP Survival Guide Pain is scary. It can make it hard to focus on anything else. It makes movement and physical activity difficult. It can make sleep impossible. Unlike many other symptoms of PRP, pain is invisible to others. Unusual or intense pain is alarming for
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How to join the PRP Support Group on Facebook For those who are seasoned Facebookers, the PRP Support Group on Facebook is relatively easy to find. Step One — Go to: Facebook.com Step Two — Locate: “Search for people, places and things” Step Three — Enter: “Pityriasis Rubra Pilaris (PRP)” Step Four — Click: “Ask
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PRP and hair-related issues Dr. Albert Einstein was famous for what he accomplished. As time passed, his hair became famous too. For PRP patients, however, hair can be a source of great despair and frustration. Some of us loose our hair and cross our fingers and hope it will return as it was. Some of us
Issues related to mental wellness IThe PRP Survival Guide is a repository of experiences and insights shared by PRP patients and their caregivers. Collectively, the PRP community possesses a wealth of practical knowledge about pityriasis rubra pilaris. We need to harvest that knowledge for those in need of enlightenment. Our emotional health is every bit as important
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It is especially fitting that the global PRP community celebrate the life of Tierney Ratti and a her nearly half-century PRP journey. While the symptoms of PRP first appeared in 1972 at the age of 11, it wasn’t until November 1994 before she reached out to the National Organization of Rare Disorders in search of other
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No hair. Don’t care. PRP can cause hair loss on parts of the body or hair loss over the entire body. In addition, some medications, such as retinoids and immunosuppressives, can cause hair loss to one degree or another. It differs with each individual. While some only have mild thinning, others may lose all their hair,
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It’s time for me to resurrect the PRP newsletter. Twenty-four issues (an average of 24 pages per issue) were published between April, 2014 and October, 2015. It has taken me two and a half years to get myself to a point — mentally — where I can make another 24-issue commitment. The following webpage is an
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There is no excerpt because this is a protected post.
Protected: COVID-19 Focus on Vaccinations FINAL Read More »
A little info on hair. Hair grows out of little pockets in your skin, called follicles. Here’s how it happens: (1) Your hair begins growing from a root in the bottom of the follicle. The root is made up of cells of protein. (2) Blood from the blood vessels in your scalp feeds the