Update #01 — Feb. 20, 2025: 10:00 PM, Plano, TX First Questions will be the first of four 60-Second PRP Roadmap books to be written about PRP from the patient perspective. In my humble opinion, every PRP patient should review every word I write about PRP before First Questions is ever published. As a […]
60-Second PRP Roadmap FIRST QUESTIONS Read More »
An Urgent Message ToAll Members Of ThePRP Support Group On October 2, 2024 — without any warning — Facebook Technology removed our the Facebook-based PRP Support Group. I made an immediate appeal which meant “clicking a button and hoping for the best.” Within a few hours my appeal was summarily denied and our PRP Facebook
New Member Orientation Facebook – Copy Read More »
PRP Perspectives: Pain by Jan Tennant, Senior Editor, PRP Survival Guide Pain is scary. It can make it hard to focus on anything else. It makes movement and physical activity difficult. It can make sleep impossible. Unlike many other symptoms of PRP, pain is invisible to others. Unusual or intense pain is alarming for
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How to join the PRP Support Group on Facebook For those who are seasoned Facebookers, the PRP Support Group on Facebook is relatively easy to find. Step One — Go to: Facebook.com Step Two — Locate: “Search for people, places and things” Step Three — Enter: “Pityriasis Rubra Pilaris (PRP)” Step Four — Click: “Ask
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PRP and hair-related issues Dr. Albert Einstein was famous for what he accomplished. As time passed, his hair became famous too. For PRP patients, however, hair can be a source of great despair and frustration. Some of us loose our hair and cross our fingers and hope it will return as it was. Some of us
Issues related to mental wellness IThe PRP Survival Guide is a repository of experiences and insights shared by PRP patients and their caregivers. Collectively, the PRP community possesses a wealth of practical knowledge about pityriasis rubra pilaris. We need to harvest that knowledge for those in need of enlightenment. Our emotional health is every bit as important
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It is especially fitting that the global PRP community celebrate the life of Tierney Ratti and a her nearly half-century PRP journey. While the symptoms of PRP first appeared in 1972 at the age of 11, it wasn’t until November 1994 before she reached out to the National Organization of Rare Disorders in search of other
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No hair. Don’t care. PRP can cause hair loss on parts of the body or hair loss over the entire body. In addition, some medications, such as retinoids and immunosuppressives, can cause hair loss to one degree or another. It differs with each individual. While some only have mild thinning, others may lose all their hair,
No Hair. Don’t Care! Read More »
It’s time for me to resurrect the PRP newsletter. Twenty-four issues (an average of 24 pages per issue) were published between April, 2014 and October, 2015. It has taken me two and a half years to get myself to a point — mentally — where I can make another 24-issue commitment. The following webpage is an
A PRP Newsletter Reborn Read More »
There is no excerpt because this is a protected post.
Protected: COVID-19 Focus on Vaccinations FINAL Read More »